Ed J
Posted by

Aiming for £30,000

Ed J
Posted by
23 Mar 2015

If the 2015 Milton Keynes Leukaemia Concert raises £3500, then I will have raised £30,000 since my CML diagnosis in March 2006

Hi all! I hope you are all well!

So far 2015 has been an interesting year for yours truly. In October last year I have suffered with quite intense pain from inflamed muscles up my left leg, which after a bit of jiggery and slightly more pokery the medics have deduced has been due to my CML medication. Quite a bit of time off work had to be taken, as life for the Jones began to take a scary turn after years of quite uneventful take-pill-and-see-a-professor-every-3-months drudgery. Important questions sailed into view - would there be other pills that I could take? Would those pills in turn bring new side effects? Would my beloved West Ham United return to their famed attacking passing style of football?

Well, whilst I was off Leukaemia medication, it then became clear that I was in fact stable without medication. No one would ever have known if my leg hadn't started misbehaving in such a self-centred way. So, having been told, I sat there shaking in the restaurant of Hammersmith Hospital, with the previous 9 years flashing before me.

I remembered the Milton Keynes Leukaemia Concerts, which began in July 2006 and have taken place every year since except 2011, when senseless tragedy left no one in any mood to organise it. I remembered the great concerts and the not-so-great, I remembered all the acts and volunteers that had taken part. I remembered the hosts complimenting my mum's chest, I remembered the support of Leslie Nemes' concert T shirts, and I remembered all the bar records that gave proof to quite unbelievably superhuman feats of alcoholic consumption.

I remembered the fundraising walks that myself and my brother had completed - the 3 peaks challenge, the Jurassic Coast and The Essex Way. I remembered being out in rural Essex when hearing the heartbreaking news of the aforementioned senseless tragedy, and how the support of my family and friends saw me through to the end. I remembered how my place of work, Denbigh School, had allowed me the opportunity to organise a charity day, and I remembered how 2 friends chose the first time they had been in an aeroplane to immediately jump out of it in mid-air for me and the charity.

So here we are. 2 months away from Saturday May 23 and the concert. So far this year we have raised £2300. If we raise another £900 we will break the £30,000 barrier. The quiet part of me will be quietly pleased if this happens, but the noisy part of me will not allow such emotion to become visible. All we can do, after all, is our best

Please visit my JustGiving page to find out more about the concert and make a donation

Comments

Anonymous
23.03.2015

Top man ed. We're all well proud of you and your tireless efforts for such a worthy cause. Many thanks for letting me take part.

24.03.2015

Hi Ed,

Thanks so much for the update although sorry to hear that you've been having problems with your medication. What's the latest on this - are you still off treatment?

What you've achieved over the years for us is absolutley fantastic and as a fellow CML patient I cannot thank you enough for everything that you've done and continue to do to help us beat blood cancer. You're an absolute inspiration to us all and we will do everything we can to help you reach the £30,000.

Stay in touch and hope that your leg pain has resolved itself.

Anonymous
24.03.2015

Thank you Andy - it's certainly well within our sights

Anonymous
24.03.2015

One of the few ever-presents left now, Dave. I think it's me, you, Mum, Dad and Rob

Anonymous
09.04.2015

another jovial blog update.....dig deep everyone. I for one, know what this money does. My own daughter, Lucy would not be here without all the fundraising, which leads to new treatments, drugs and chemo regimes. The odds of beating Leukaemia and Lymphoma have never been better.......but will only continue, so long as we keep up the battle.