Brenda L
Posted by

ANYBODY OUT THERE ??????

Brenda L
Posted by
20 Sep 2014

CHRONIC NEUTROPHILLIC LEUKAEMIA

Since being diagnosed in 20l2 with CNL  this blog is yet another attempt to reach other people who may have this very rare form of leukaemia.  Unfortunately, so far I have not met with any success, nor is there much in the way of helpful information out there.  I am hoping that just, maybe, there is someone who can help, either by sharing their own experiences, or a source from which I could learn more about this condition.  Thank you for caring.  Brenda.

 

 

Comments

Anonymous
10.10.2014

Brenda- I have also been searching for others with cml. I have had a lot of issues with side effects to my chemo. Would love to talk ando compare notes with someone else....

10.10.2014

Hi I have CML and was diagnosed 10 years ago if you would like to get in touch we can compare stories my email is steven.carol@ntlworld.com you can also facebook me I'm steven Davies  from London and my picture also shows me with my wife. I look forward to hearing from you.

sorry Brenda as we know each other we have already spoken and met.,I hope somebody with CNL contacts you soon 

Anonymous
12.10.2014

CHRONIC NEUTROPHILIC LEUKAEMIA

Thank you for taking the time to reply to my blog. I am so sorry that you are having issues with your chemo, but as I do not have the same form of Leukaemia, I wonder whether you would like to contact my friend who has CML. I know he would be pleased to talk to you. His email is
steven.carol@ntlworld.com

Best Wishes, Brenda

Aileen H.
12.11.2015

Hi Brenda my husband has recently been diagnosed with CNL and I can understand how alone you must feel. I know that he won't contact you himself but if you would like to say hello to me and have a chat contact me initially through Facebook. I'm known as Ham Neggs and it will be a photograph of my two dogs that you will see. I am not keen on putting my personal information onto the Internet. I hope you get this message and look forward to hearing from you. Aileen