Leanne F
Posted by

Anyone out there with a 2 year old with MDS who would like an email friend?

Leanne F
Posted by
27 Mar 2014

I am a disabled mother of a 2 year old girl who has just been diagnosed with MDS. I am well supported by my family but would be interested in corresponding with someone in a similar situation as we go through the process leading up to bone Marrow Transplant.

Leanne

Comments

28.03.2014

Anyone out there with a 2 year old with MDS who would like an email friend?

I am a disabled mother of a 2 year old girl who has just been diagnosed with MDS. I am well supported by my family but would be interested in corresponding with someone in a similar situation as we go through the process leading up to bone Marrow Transplant.

05.04.2014

Hi Leanne,

First things first, thank you so much for joining our blood cancer community and being bold enough to share your story. Diagnosis is a very difficult and confusing time for blood cancer patients and their families and with so much to come to terms with and get your head round it can become a bit overwhelming.

It sounds like you've got a good family support base around you which is an excellent starting point. We're also here to help in any capacity that we can and where we can't will be able to point you in the direction of somebody that can. We don't currently have many people in the community that are currently being treated for MDS but do have someone who has been through treatment who has written about her experiences which might be of interest. Her name is Daisy Turner and she's since worked with us at the charity as a volunteer. Here's her blog:

http://leukaemialymphomaresearch.org.uk/news-item/my-battle-mds

We also have a number of resource booklets and information available that might be of use.

Good luck in the build up to the transplant and do stay in touch.

Andy