Grace Harington
Posted by

APPG Meeting

Grace Harington
Posted by
04 Apr 2018

A look at what came out of the last APPG meeting

The recent APPG meeting at the houses of Parliament focused on patient experience- particularly watch and wait and living with and beyond blood cancer. Katie Ruane and Vivien Dagley spoke about their experiences. We also heard from two nurse specialists from St. Barts Hospital, Sarah Pearson, senior nurse for Haematology-oncology and Tina Brooks, CNS for lymphoma. They both spoke to how difficult blood cancer diagnosis can be and stressed the importance of better support.
The report is supported by the Chair, Henry Smith MP. There were also responses from Steve Brine, the Cancer Minister and NHS England to the recommendations we made in the report. A slow process, however momentum is still being made. Here is a look at some of the actions that came out of the meeting:

· Further examination of the role of multi-disciplinary centres – centres where GP’s can refer patients who have vague symptoms such as those often seen before blood cancer diagnosis.
· Awaiting response from RCGPs to the APPG report and then we may consider inviting them to the next meeting of the APPG;
· Further questions regarding the recovery package and its relevance to watch and wait and other blood cancer patients;
· Further investigation in the access to Clinical Nurse Specialists for blood cancer patients;
· Confirm what resource is left in the Cancer Drugs Fund
· Proposal that the APPG on Blood Cancer hold a joint meeting with the APPG on Cancer to discuss CAR-T cell therapy

There are many dedicated, driven people behind this report who are working tirelessly to bring blood cancer issues to the forefront. A big thanks to our Policy team, our Ambassador speakers, the MPs and healthcare professionals, who have worked extremely hard in making progress with the report.