Paul Lockyer
Posted by

The battle commences !

Paul Lockyer
Posted by
31 Dec 2015

One of the biggest hurdles is you convince yourself that once your BMT is done it's just a matter of time before things are "normal" again. Let me tell you this is actually only the beginning of the next battle. l arrived home on D+30 still very tired everything was an effort after even the simplest of tasks l would need to rest.

Now at home each morning there was a set routine before going down stairs we would make sure l was set for the day so as not to climb the stairs any more than necessary. 
I was on ship loads of anti-rejection medication. At this time l was sleeping around 18 to 20 hours each day, l remember watching the news on TV & struggling through to around 8PM which meant l could slope off to bed.

Over the next few weeks l had to find a balance between resting and exercising to build up some strength & stamina. l had lost quite a of muscle whilst confined to barracks & any task how ever small felt like l had completed a marathon ! It was a struggle to cope with the fatigue, normally if you feel tired you have a couple of good nights sleep & you get over it. Dealing with "FATIGUE" is a different thing you feel tired you go to bed.... you wake up.... you still feel the same and this went on for weeks.

Luckily the weather was improving & l could sit in the garden some days, l remember fondly sitting in the chair with my big coat, wooly hat, gloves & sun glasses, the warmth of the SUN & a Calypo ! Heaven.

It seemed like we had just got home & we were back on what would be the first of many trips round the M25 to the Royal Marsden in Sutton. This is THE journey from hell on a Monday morning at the best of times but when you feel as rough as this !! 

June brought about my first real adventure outside of going to hospital, my wife treated us to a week away at the "health" farm. 24 hrs/seven days relaxation. I am not sure carrot juice & salad are my favourites but l came back relaxed for sure.

By July l was feeling a bit more like my old self, we managed a few days out including a couple to the seaside. It seemed right to begin thinking of returning to work, we were due to go on holiday late August & this would give me another six weeks recovery time. I had in mind the end of September may be the beginning of October.




Paul I could not possibly agree more with this blog. This is almost EXACTLY as I felt and I was so underprepared for how long it would take me to get back to 'normal' again post transplant.

I hadn't prepared for the endless colds, the struggle to put weight back on and to keep the cyclosplorin down or the seemingly endless hospital visits to begin with. I found that it was after it was all over that I also began to fully comprehend everything that I'd put my body through and how close to death I'd got so it was as much a mental struggle as anything else.

I think it's great that you set yourself targets as that's the only way that you can get through it all. That and the fact that you have to remember that for every down day there was always a good one again waiting round the corner and that bit by bit even if it didn't feel like it I was making progress.

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