Update: we're delighted to say that since we sent this letter, NHS England have confirmed that two blood cancer treatments will continue to be available to NHS patients via the Cancer Drugs Fund. The treatments were delisted from the CDF in September, but have been readmitted following negotiations between NHS England and the drugs’ manufacturers. Read more >
Open letter to Rt Hon David Cameron MP and Rt Hon Jeremy Hunt MP
3 November 2015
Dear Prime Minister and Secretary of State for Health
Blood cancer charities urge Government for Cancer Drugs Fund solution
As an alliance of blood cancer charities, and on behalf of the 27,000 blood cancer patients and their families who have signed the petition against the recent delisting of life-saving drugs from the Cancer Drugs Fund, we are writing to express our deep concern regarding the Government’s failure on the Cancer Drugs Fund (CDF).
The Government has always been aware of the flawed nature of the CDF, but due to politics, has let it progress to the situation where clinically effective treatments are being removed without a long-term solution to access being in place. The CDF is majorly overspent and no data has been collected on whether or not any CDF-funded treatments have actually worked. As a result of these failures 12 blood cancer drug indications, previously deemed clinically effective by NHS England, are set to be removed from the Fund with no guarantee of any future access.
Blood cancer patients have been badly let down by being caught in the middle of a set of competing interests that have led to the failure of the CDF from all perspectives.
Whilst we appreciate that drugs need to be both clinically and cost-effective to be made available on the NHS, the Government’s inability to put cancer patients first and resolve this issue, has led to a series of short-term approaches, such that treatments can be approved in January and then removed in November despite good clinical outcomes. This is wholly unacceptable and the removal of these medicines from the CDF harms patients and removes the only hope of effective treatment for some people with blood cancer.
While the CDF has improved access to cancer drugs not routinely available on the NHS in England, it was always intended to be a temporary solution while a long-term pricing mechanism was worked out. We are frustrated at the ongoing delay and uncertainty that has surrounded the CDF reform process and hold the Government accountable.
Through the revised CDF and the independent Accelerated Access Review, there is a real opportunity to put patients at the heart of the system and ensure they are able to access the newest and most innovative medicines on the NHS, as they are in leading European countries. Given the volume of effective blood cancer drugs coming down the line, this is an opportunity that the Government can no longer afford to miss.
Blood Cancers Alliance
CLL Support Association