Katie R
Posted by

Changing Consultants

Katie R
Posted by
07 Nov 2014

Well my lovely bloglets.

Changing consultants.  I'm not going to lie, I didn't think or know this was possible.  Until it happened to me.

I started seeing my old consultant, let’s call them consultant 1 at my hospital which is now my full time hospital by chance.  This is because I was diagnosed at Uni but didn't live there full time, and my Consultant there, let’s call them Consultant A, knew Consultant 1 and checked with me that I didn't mind travelling for check-ups during uni holidays which I didn't. Because of this I actually go to a hospital that isn't the correct one for my post code, but never mind, this is straying from the point.

I was under the care or as I now see it ‘care’ from Consultant 1 from Spring 2007 until Spring (ish I think) 2013.  This is not a post to rant about how I now feel about Consultant 1, I have done that before in no doubt multiple blog posts, so don’t really need to do it again.  And also, the change between Consultant A and Consultant 1 was such a relief that it took a few years for these feelings to emerge.

I had felt for a while that Consultant 1 wasn't really listening to me and I felt a bit like I had my head patted at the end of each consultation and sent on my way with nothing actually being listened to.  I had for a while had the promise of a trial that could mean coming off treatment which is what I want.  Fatigue and depression were getting worse and worse no doubt linked to increased stress at uni with my insane degree (I have recently qualified as a Naturopathic Physician).  I went to my check up where I had been promised that I would be told about the trial and Consultant 1 wasn't there.  I was called in by a consultant I recognised but didn't know and said I would like to see Consultant 1 and was told they were not there.  I went into new consultant’s room, let’s call them Consultant 2 and went mental.  Screaming, crying, swearing, the works.  I'm sure the waiting room heard every single word.  My father happened to be with me for that consultation and got me to calm down. Basically I had had enough and Consultant 2 got the brunt of it.  Now, this is where it got interesting.  Consultant 2 LISTENED to me and changed my drug dosage.  Immediately. To see if things got better and told me to go back in 6 weeks.  I couldn't believe it.  I WAS FINALLY LISTENED TO AFTER 6 AND A HALF YEARS OF TREATMENT!!!  And from then on, when I went back to the hospital I booked in with reception with Consultant 2 and I essentially changed my consultant without asking.  I did it.  Patient power.

Unfortunately since this change in consultants, Consultant 2 has left the hospital which I found rather upsetting as I had finally started to be listened to and positive changes made with my treatment, for me to try and conquer the fatigue and depression, which were side effects of the drugs.  Joy.  I asked Consultant 2 who I should see who was on the same page as them in terms of treating ME as a person and LISTENING and BELIEVING ME and not just prescribing me ant-depressants and they suggested Consultant 3.  Consultant 2 also took me off the drugs to see if it really was the drugs or me.  It was the drugs.

So Consultant 3.  I don’t actually have enough time to get across how much I love them.  They have WITH ME discussed treatment options and changed my drugs to see if another are any better.  They have also played about with the dosage to see if it’s any more manageable.  Consultant 1 did hijack me recently and wouldn't let me see Consultant 3.  I was livid.  Consultant 3 PHONED ME that evening to apologise and I now go to a clinic on a different day so this can’t happen again.  Consultant 3 listens and communicates and emails and listens.  By the way, they listen.  I can’t tell you how this feels.  I am no longer banging my head against a brick wall.  Oh, and another thing.  I am INVOLVED in my treatment decisions.  Amazing.

So, if you are unhappy with your consultant there may be options, maybe you don’t have to see them.  It took me 6 and a half years to realise this.  You have a choice.  It can be scary and you have to be brave, but you can do it.  Don’t leave it until you explode screaming and crying hysterically in your appointment.  Speak to your CNS (Clinical Nurse Specialist) if you have one or another nurse in the clinic.  They can help guide you.  There is choice available as far as I know.  Don’t be unhappy.  Remember YOU know what it’s like to have cancer and how YOU feel on the treatment.  The consultant probably doesn't.  And remember, if you need a bit of support to speak out, take someone with you. I don’t know if I would have been quite so explosive if my father hadn't been there.  And the change that has happened for the good since that appointment has been phenomenal.

With love and hope,




This blog is excellent! 

I think a lot of patients forget/aren't aware that you are able to get a second opinion/switch consultants. It's really important that you feel comfortable with your consultant as you need to be able to tell them everything about how you're feeling for them to be able to assist you.

In many ways it's a partnership (or at least it should be) between you and your consultant with you working out together what works best for you. Patient choice and patient voice are so important and this blog really helps inforce that - thank you!

It's great that you're happier now and it's a direct result of you expressing how you feel and getting the right consultant for you that you're on the treatment regime that you're happy with.


Hi Katie,

I'm a Belgian 25 years old girl, diagnosed with CML since 3,5 years. It seems odd, but I'm 'happy' to read your blog. I hear a lot about 'how happy I have to be that those medication exist' and 'how good life quality is', and that there aren't a lot of side effects. But I do have a lot of side effects, but doesn't feel the support or believe from my consultant too. It's nice to hear that there are other people to, who are struggling with the medication, with those side effects. That it is hard. But that we do have a choice! And we keep fighting it!
Good luck with your new consultant! I hope the tiredness will be better!


This was very moving and so well written. It highlights what I believe is a very big issue. Too many consultants are superficial in their dealings with patients and they have no idea about the stress and helplessness their attitude causes.


....... The fog of modern medicine needs people like you to remind us that this is our body. So far my guys seems good - but I haven't started treatment yet, I just have to trust that what they say is , in fact, true.