Adrian
Posted by

CLL

Adrian
Posted by
20 Feb 2017

Treatment and working

Hi I am wondering has anyone worked while have FCR treatment and also what this treatment is like I have been told that I may have to start treatment at the end year has anybody got any advice they can give me on this treatment 

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25.05.2017

Hi Adrian, as most other people have said your treatment team are the best source of advice on this.

I am halfway through my treatment with CLL but on IR as I am on the FLAIR trial where you have a 50/50 chance of being on IR or FCR.  I have a very good employer who I discussed before hand the limitations likely for me when treatment started.  I work in a very low density office at my homebase, but my job also invloves flying around the world.  So the travelling was a definite no, and with my employer we have found work arounds for that.  Also I have set up home working for if anyone in the office is exposed or has any illnesses.  I also have access to a private office with its own air con system if I need to quarantine myself.  So my employer has been very good indeed.  

For me I have not missed one days work so far, apart from the IV days for the Rituximab, and apart from being a little more tired in the first week following this everything has been normal.  Having it on a friday gives me two days grace before the woring week starts, so you can ask your treatment team if you can have your on Fridays. I have even being able to go for small runs, nothing over 5 miles though as I am concious that I do not want to overdo it.  I have been super lucky so far, but I did prepare myself going into the chemo with lots of exercise and endurance running (three marathons) to build my stamina as I knew fatigue was a maor risk during treatment.  Sometimes you can improve your luck.  Everyones journey is different, prepare for the worse and when its better you can only smile.

So my steps would be; 

1/ talk to your treatment team and let them guide you,  

2/ talk to your employers to see if there are work arounds in your job,

3/ if you have time get yourself as fit and strong as possible before going into chemo, as I am sure it helped me.