Moss J
Posted by

Day 30

Moss J
Posted by
17 Sep 2015

Coming home and getting used to the fact that it will take time to get back to doing what I used to do after transplant.

So I've been home 3 weeks and today is the first milepost, day 30. What to say about the past few weeks? Being home has been lovely, I completed my first ever target set months ago and took my little girl for her first day at school which was so very important to me. 

However it's been tough, getting used to the drug routine, the tiredness, muscle ache and frustration at not being able to just get on and do what I want to do. My head tells me one thing and my body is just not responding the way I want it to, simple things like cooking a meal or hanging the washing out now result in the need for a nap afterwards.

Anyway, on the positive side my counts are increasing really well and the doctor thought I looked really well. The next step is getting to day 100 and having a bone marrow test to see if I'm  100% donor cells. Day 100 is 26th November, seems a very very long way but if I think about it I'll go mad so the next cpl months are going to be about getting energy back and family time and keeping well. Xxxx

Comments

02.11.2015

Josie,

It's wonderful to hear that you're home and I hope that since writing this blog you've begun to pick up as your body recovers from the transplant. This can be a frustrating process with many ups and downs along the way. The important thing to appreciate is that you're not alone and support and information is out there should you need it. This booklet from Anthony Nolan is a good starting point:

https://bloodwise.org.uk/sites/default/files/documents/anthony_nolan_the...

We're behind you every step of the way and I really admire how positive and strong  you've been so far.

Andy