Moss J
Posted by

day -7

Moss J
Posted by
12 Aug 2015

published a day late as apparently having something as simple as wifi in a massive hospital like this is too much to ask!

A bit of a funny morning, I'm so used to Worcester and they are so used to me. They knew all my  likes and dislikes, little quirks, knew my children by name and I felt so at home there. I don't feel settled here yet at all but I guess that will come.

At 9am the Pirates (ha ha that was meant to be porter, daft predictive text though pirates would have been much more fun!) picked me up for my first radiotherapy session. I didn't feel nervous, I wanted to get started. I asked to walk rather than sit in the wheelchair as while I'm still feeling fit I'd like to act like it. Once at the dept I was met by 3 lovely staff who reminded me of the process. I was seated in the big black chair (if they'd given me a wet sponge to strap to my head and a piece of leather to bit on us have been concerned!) quite a long time is spent adjusting the machine so it avoids your head, good thing I guess, and making sure all your body is covered by the big clear screen they roll in front of you. Then the staff leave the room, leaving on a good randomising selection on and the machine starts ticking away. You don't feel anything and it only takes about 5 minutes to do each side of your body. Dose 1 of 8 done.

Back in my room I have a little read of the booklet I've been given about TBI and its side effects. 'Most people suffer fewer effects than chemotherapy, nausea and sickness is minimum.' Well I obviously like to be different as within an hour I was violently poorly and proceeded to be so every 15-30 mins for the next 2-3 hrs. I finally decided enough was enough and pressed my buzzer for a nurse. I hate pressing my buzzer, it makes me feel needy but don't worry I got told off for letting it get so bad! I was given ondansetrobe through my HICC and felt much better within a few minutes. Must discuss anti sickness regime with docs tomorrow. Lesson 1- don't try and be tough, ask for help!

Well the rest of the day passed fairly quickly, watched the essential day time TV, read a bit, coloured in then at 4 pm was taken for dose 2, they were behind so I was a bit late back. Annoyingly no one seemed to notice my absense at dinner time so at 7 pm when I asked what time dinner was I was met with "oh my goodness did you not get yours?" Er no love, where's my burger and chips? " They will have binned it due to health and safety, we can't reheat food." Sandwich it is then. I'm not normally a complainer but how hard is it to tick off people names from a list as you serve them dinner and spot someone is missing?!

Anyway, tomorrow my gorgeous girls are visiting with my folks and 2 of my besties in the evening (if they find their way in

Comments

12.08.2015

This takes me back Josie to when I was in having my TBI. Did they let you choose your own music? It zapped me too and I was sick a few times but the anti-nausea and pain relief drugs that they have are amazing and you definitely shouldn't be embarrassed about pressing that buzzer as it's what it's there for!

Rest up and save your energy for the visit of your beautiful girls and your two besties later!

Anonymous
12.08.2015

God Bless you and your family, Josie. From Inte8rand on Twitter.

12.08.2015

Wishing you all the luck in the world for the days ahead. Now is not the time to be brave. When I had my SCT I made sure I had all the drugs available and top ups when needed. A family visit is just what the doctor ordered. Never be afraid to speak up if you think somebody has forgotten something... like food...after all nurses are human and can make mistakes as fab as they are.I will be thinking of you and your family in the coming days, and look forward to hearing that all has gone well.Love to you and the family.

 

 

 

 

 

 

 

 

Anonymous
12.08.2015

Hi Josie, sorry to hear you have been sick, but looks like it's under control now. You are on the countdown now so good luck for the rest of the treatment I hope it all goes well! I've just had treatment 16 of my radiotherapy so more than half way there, just 10 more to go. Feeling very tired now. Lots of love to you, Aunty Katexx

Anonymous
12.08.2015

Bless you and good luck on your journey.a big hug oxox

Anonymous
12.08.2015

Josie, you are so honest with this blog, and an inspiration to many on your attitude to your whole situation. Looking forward to seeing you back at Dunnington after your transplant & recovery. Best wishes, Chris Pearson (Matthew's dad)

12.08.2015



Thanks Josie. I have just finished cycle 1 of FLAG-IDA and am heading for cycle 2 next week having found I have got remission. I'm probably about 2 months behind you, depending on if/when I get a donor match. Keep up the blog when you can, the honestly written downs and ups are something we all identify with and really are a help, shut away as blood cancer patients as you know we don't meet many other patients! Best wishes to you and your family, Brett

Anonymous
13.08.2015

Hi
I am parent from the school you teach at and although my girls are relatively new to the school (and you won't have taught them) they know all about you and speak highly of how kind you are (always great praise for a teacher!).
Your blog is great, I especially enjoyed the idea of pirates wheeling you off to your treatment...maybe ask one of them to pop a stuffed parrot on their shoulder or shout "ooo ahhh Jim Laaad!" when you reach the treatment room next time?
The school has kept us up to date with how you are doing, but from the sound of your blog you are keeping your spirits high and positive.
I found your blog through Madeleine's mum on fb (M is a good friend to my youngest who started in her year last September).
You are in the thoughts of the parents and everyone is looking forward to you returning soon, take care and avoid marauding pirates wherever possible.

Anonymous
13.08.2015

We've been thinking of you Josie. Just yesterday Tanya Bates, Jools Herbert & I were talking about your blog & just how strong & positive you are. Sending you so much love & best wishes to help you get through your treatment. We've all missed your lovely smile at school. Abi, Mark, Ella & Sam xx

Anonymous
13.08.2015

Go for it girl. I've had cancer twice (radio x2 and chemo) and I'm still here 15 years later. You can do it, never stop believing that you will come out the other side. Don't demonise cancer, do what you are doing and you'll kick it's ass! Lots of love to you from me, Annie x

Anonymous
13.08.2015

Praying for you Moss Josephine!!!

Anonymous
15.08.2015

Prayers for good results for you.