I was diagnosed with acute myeloid leukaemia in December 2014, achieved remission after 3 cycles of chemo but then relapsed in August this year.
Since then I have had 2 cycles of chemotherapy. The first was FLAG but my biopsy 3 weeks later showed that while it had reduced the leukaemia, but hadn't got rid of it completely. So for my second cycle I've had something called GCLAC which my consultant had to apply for funding for.
I'm 2 weeks post finishing that cycle and I'm feeling really bad. I've got bad mucositis which is making me feel pretty rubbish and I've had a temperature spike so I got admitted yesterday. Despite being hit with three different types of antibiotics my CRP infection marker is stills going up. Fingers crossed I start to recover soon...
When I recover I'll be having a stem cell transplant which is my only chance of beating this disease once and for all! On the positive side my sister is a 100% match and she is desperate to be my donor. She is even losing weight for me. Her BMI was slightly over the upper limit for donors, but in the last 9 weeks she has lost 25lbs to ensure she is well inside the healthy weight to range. Now that is sisterly love!
Anyway, this is my first post. Nice to meet you all, and I hope to keep blogging through my recovery and stem cell transplant in a few weeks time.