Janet C
Posted by

Diagnosis of CLL

Janet C
Posted by
24 Nov 2014

Coping with CLL

On May 19th 2014 I was diagnosed with chronic lymphocytic leukaemia. Knowing for many years that there is a strong family of history of leukaemia, then finding out about my diagnosis was a complete shock to me. On December 24th 1998 my Mum passed away from CLL, having been diagnosed 18 months earlier. In 1993 one of my Mum's brothers passed away from Non-Hodgkins lymphoma and in 1967, my Mum's sister passed away from actute lymphoblastic leukaemia

In November 2013 I began to feel unwell, I seemed to feel constantly tired and generally run down, having colds that I couldn't shake off etc. So began a series of appointments with my GP who in early 2014, and due to the family history of leukaemia, referred me to see a consultant at my local Hospital. I received my diagnosis on May 19th 2014. Since then I have had regular blood tests and consultations with my consultant. In the future there is the possibility of treatment, but generally I remain positive and have been setting myself realistic goals, and generally enjoying life with the support of family and friends.

From the beginning of my diagnosis I began to keep a diary and generally writing day to day things about how I am feeling at the time, including thoughts and even fears. However I believe that by keeping a good mental attitude and surrounding myself with my lovely family and friends is going to help me. Thank you also for the support of Leukaemia & Lymphoma Research.



Hi Janet,

Really sorry to hear about your recent diagnosis although it sounds like you've adopted a positive attitude and have a good set of family and friends behind you which will really help.

Given your family history you've had more than your fair share of blood cancer but it's important to know that you're not alone and that support and help are out there for you should you need it. We've got lots of information available in our Patient Support section of the site while you might also find this blog with patient tips for those recently diagnosed with blood cancer of use: 


Do stay in touch - you'll have to keep us updated with your blog - and all the best with your treatment. If there is anything that we can do to help, please don't hesitate to get in touch as that's what we're here for.


I was diagnosed with cll in 10/2009, I see my alternative dr, take multi vitamins, use an infrared sauna, and keep busy with family, friends.
Recently my white count rose, so am also very much watching my diet.
I would forget the diary, you don't need to be reminded daily. Keep busy and do what ever you think could help you. Best wishes



 I was diagnosed in 2014 on watch and wait, working hard and trying hard to remain positive.