Kate G
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Diary of a "Fake" Cancer Patient - Getting my life back

Kate G
Posted by
20 May 2014

Well I was back in work again last Friday – I missed only 4 days in the end & was extremely glad to be back in the swing of things. There’s something very nice about being back in work, reading my emails, catching up on the gossip & generally feeling normal. I was pretty tired by the end of the day but as a social person, I thrive on being around others & don’t like being “stuck” at home. As I said in my last blog, the trouble with being at home is it gives me far too much time to think & to google ……

I have always struggled with enforced time at home - when I broke my foot I found it extremely difficult not being able to drive & to enjoy the social contact that working brings me. I’m also not ashamed to say that even in this era of “yummy mummies” that I found maternity leave incredibly isolating & I’m sure that this contributed in part to my feeling extremely low when Dan was a newborn baby, all of which has set me thinking …..

I’ve spoken at length about the psychological challenges faced by cancer patients & have personally benefited greatly from speaking to others via clinicians, support networks & charities however, in ALL cases the initial contact has been made as a consequence of something that I’ve done or someone I know. Let me explain – I was referred to a clinical psychologist because I went to pieces in front of my Consultant Haematologist, I went to a support group because I picked up a leaflet at clinic & I was lucky enough to meet someone from LLR at an event organised by one of my best friends to raise money for research. In other words, I was able to express myself & to articulate how I was feeling however not everyone is as fortunate as I am. I also have a large family & lots of friends who keep me grounded & regularly check up on me !

So what does this all mean? I think what I am saying is that we need more social outlets for people who are in “isolation” e.g. unable to leave the house because they are not feeling well enough. In recent weeks, use of social media has demonstrated that it is possible to raise vast amounts of money & awareness in a very short time when campaigns have gone viral so maybe we need to harness this capability in a way to connect better with those who struggle with a lack of social contact through chronic or acute illness. It could be something as simple as regular face-to-face calls via Skype or emails & texts just to say hello. I would love to think that we could galvanise people just to keep in touch with those who are unwell so that they can benefit from that sense of normality that is an essential part of living your life rather than simply existing ……


Ellie Dawes

Wise words Kate! This is very interesting for us to read here at LLR because what you're describing is a big part of our thinking as we plan developments for this website. 

We've spoken to many blood cancer patients who feel a similar way and crave more channels to interact with each other. We have exciting future plans for this platform that will start with these blogs and grow to include possible features like friending, messaging and forums. We would love to hear your feedback as things develop, and if you have any suggestions please do get in touch!  


I second everything that Ellie says, Kate.

We've spoken to several blood cancer patients who have expressed similar concerns and providing a platform for you to express your feelings and read and engage with others affected by blood cancer is just the start.

Among future features we're looking to introduce in the future is a private messaging facility and a live chat feature where people who feel isolated will be able to chat with each other in real time. I'm also very excited by our upcoming community forum facility which will give blood cancer patients an opporutnity to discuss the kind of issues that you've been raising.

In the fullness of time, we're hoping we will establish a community where people can share their experiences, help others and form lasting friendships which will help patients through blood cancer.

Keep up the good work with your blogs - they always provide an interesting view point and raise some very valid concerns that many others will be feeling.

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