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Emma's story on joining our online forum

The Bloodwise logo. Bloodwise appears in black text against a white background
Posted by
14 Oct 2019

Chatting to our Online Community Forum helps Emma feel normal - and that she's not alone.

Emma was diagnosed with acute Lymphoblastic Leukaemia (ALL) in October 2015. Her treatment involved nine months of intensive chemotherapy, taking over 20 different chemotherapy and anti-sickness drugs.

It was then followed by two years of maintenance chemotherapy, designed to prevent the Leukaemia from returning.

"I was only two months into this journey when I got my first infection and ended up in ICU. This was one of the hardest times for my partner and my family. They didn’t know if I would pull through and they spent that time just going through the motions, hoping I would get out of it and without any lasting damage.

"It was during Christmas and on Christmas day, while I was awake for some of it, I was confused and didn’t really know where I was. For the seven weeks in total that I was in hospital, my partner and my mam would visit me daily to make sure I was ok and help me do things because I’d lost so much weight and had an open wound down my abdomen.

"I've been empowered by the support I have around me."

"Six months after I’d left ICU the first time, I was back in there in an induced coma due to neutropenic sepsis. Though I am doing really well now, blood cancer has had a huge impact on my friends, family and me. I have been empowered by the support I have around me, both close family and friends and I have such confidence in the medical team at the Freeman.

"I feel like I’ve changed as an individual, my outlook has changed in some respects. I can’t really explain how but I find I’m less inclined to worry about the little things. I also have a need to share my experiences in the hope that I can help others.

"It's amazing to talk to others who just get it."

"Sometimes it feels like I'm the only person in the world who is going through the tough parts of a blood cancer diagnosis... so it's amazing to be able to talk to others who just get it and might even have some tips to share. Chatting in the forum has helped me appreciate that what I'm feeling is normal and that I'm not alone.”

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