Michael A
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Experts by Experience

Michael A
Posted by
07 Apr 2014

The journey to informed self management and self awareness of living with CLL.

Tests, and the dawning realisation that one's health is at risk wad my first innocent encounter with the medical forces that are wound up and ready to spring into action in urgent diagnostic mode. The British National Health Service is well designed to investigate, but Is not so good  at being person centred in support of a chronic illness.

im a massive fan of the NHS but also a critical Friend! It's at it's best at intervention but, perhaps, at its worst in bouncing we patients from department to department, from test to test.

my journey begins with a desire to KNOW. A desire to prepare for my journey, to be mindful of the possibilities, probabilities and inevitabilities along the path.

so, to be well as long as possible and to pilot rather than passenger my trip over the ocean of health deterioration!