Its remarkable that in such a short space of time, I have been told "you have normal bloods." I cannot explain how exciting that news is. Despite thinking positively and being told by my consultant the medication is well tolerated, there is always that little whisper of doubt. When I was first diagnosed (only 2 months ago) my white blood cell count was 494 which is dangerously high. It is now relatively normal.
It seems pretty crazy that within 8 weeks I've given a bone marrow sample, had two blood transfusions, a mild dose of chemotherapy and been prescribed my long term medication. I now very rarely have heart palpitations, my tinnitus has disappeared, restless legs have completely gone and I am no longer tired on a daily basis.
It is for this reason that I want to raise money for LLR. Without research, people like me would not be able to continue with their everyday lives.
Just over a decade ago, before TKI's became the standard treatment for CML, i would be waiting for a bone marrow transplant and my future may have been a lot bleaker.
I take my medication religiously at the same time every morning and when I do, I say "Good morning! Thank you for making me healthy." I know that may seem a little strange but I really am very thankful.
It is around 5 half months until Tough Mudder and I strongly believe having something to aim towards and focus on is helping my recovery. I do suffer a little with bone pain and cramps but despite this I very quickly realised that I was stronger than ever before. I am told off regularly by friends and family for working too hard but although it is nice to know that people care, excersize makes me feel healthy and I havent felt that for a very long time.
As the warm weather made an appearance at the weekend, i decided to go for a run. The last time I tried running long distance, it was before Christmas. I couldn't even manage a mile as it felt like I was running though tar. This time, I ran 3.5 miles. That is a huge achievement for me and in fact the only reason I stopped was because I saw a friend and paused for a chat.
Currently I can only manage one pull up and 10 press-ups but I'm going to keep on battling hard as I want to be able to say that I attempted every single obstacle Tough Mudder throws at us. Bizzarrely though, blood cancer is no longer a battle or even an obstacle for me but merely an inconvenience. This is thanks to research and the amazing treatment I have received from the doctors and nurses.
Please help us raise money for LLR so that others like me can be given a second chance and maybe even beat blood cancer all together.