As I get better and remain in remission, I get busier and busier, and hence have neglected my ongoing blog. LLR weren't going to let me away with it, and quite rightly so. What has been going on with me ?
Well I've progressed from 2 weekly, to 4 weekly, to 6 weekly, to 8 weekly to 12 weekly Consultant review appointments. This is a true sign of their confidence in my ongoing remission from Acute Myeloid Leukaemia. In parallel with this I still get 12 weekly bone marrow aspirates. This is partly to confirm I'm in remission but importantly to allow ongoing research as part of the Clinical Trials. I am still of the opinion that I owe so much to those that have gone before me, so I have an obligation to help those who come after me.
I've had about ten 'venesection' sessions since my last blog, where about 600ml of blood is withdrawn every 3 weeks and discarded, to lower my iron (ferritin) levels. These were at at a level of 2700 prior to venesection and are now down to 1600. I've got a bit to go but things are on course. I do get tired and can get breathless when walking etc soon after each session but it's all part of the journey.
In relation to work,
I took up the post of President of my Rotary Club in July 2014 and was to my surprise awarded a 'Paul Harris Fellowship' which is a Rotary award. As Club President, my one and only indulgence is that I get to name the main charity we will support for the following year. I was delighted my fellow members supported my nomination of LLR as our main charity for my year in post. Am I biased ? Absolutely. My wife & I attended the LLR 'Connect Scotland' event on 8th October 2014 at Glasgow City Chambers, and heard of developments in treatment,fundraising and research.
What have I done to support LLR recently and everyone reading this ? I completed a lap of the Island of Cumbrae on my bike in May 2014.........no big deal I hear you say as its only 12 miles..............I'd had a bone marrow aspirate a few days before so it was painful but fulfilling and my Rotary Club raised in excess of £5000 for LLR as a result. My wife & I missed the LLR Glasgow branch 5K walk (Forget Me Not Walk) on 31st August 2014 as we were on a Cruise...........therefore on 1st September 2014 we did 16 laps of the ship to complete our 5K. We also as part of the same trip did a sponsored hike to the Briksdal Glacier in Norway. We also helped out at the 'Small Change Big Impact' bucket collection on 13th September 2014. The supermarket collection we helped out at raised £588 of the £9000 raise that day across the country. The next event is a Rotary coffee morning on 25th October 2014..........all proceeds to LLR.
Every month it seems I hear of more people affected by Leukaemia or Lymphoma, but it just strengthens my resolve to support LLR to do what it says on all the T-shirts, banners etc "We Won't Stop Until We've Beaten Blood Cancer"