Paul Lockyer
Posted by

Its only day two

Paul Lockyer
Posted by
25 Nov 2015

From having an irritation in my hair to being told you have a very rare form of blood cancer is difficult to imagine but thats what we were dealing with. It did have one advantage though we didn't spend sleepless nights worrying about it.

After being admitted to hospital on Friday evening I was put on to a saline drip over night, I woke on Saturday morning feeling like a new man ! It was the first time for years that I had woken up & felt like I had actually had a good nights sleep. Even being disturbed through the night for Obs hadn't bothered me.

My wife (Frances) & daughter (Samantha) came in early to see me & we took stock of ourselves. It all happened so fast we didnt have time to think about the fact that I was in hospital seriously ill when we should have been joining our friends for a weeks camping holiday, it was a sure fire excuse to miss out on that experience. Frances then had the unenviable task of breaking the news to the family I had been diagnosed with T-Cell PLL Leukaemia, one thing for sure at the we didn't realise the impact it would have on our "normal daily lives".

I had been admitted to a palliative care ward because the Haematology Dept was located within. They had issued me with a temporary pass overnight but l was soon given an offical "All lncusive" wrist band, this entitled me to unlimited use of the luxury bed bath spa treatments & access to the finest steam cuisine that the hospital provided.

The consultant & doctors visited me during the morning & they were already planning my treatment timetable. The first week would see more bags of saline solution & the introduction of a treatment to break down the nodules that I had in various parts of my body. (I must say l hadn't really noticed these the doctors had identified them). Whilst with the doctors they asked me about any symptoms I had experienced, I could only say that I was suffering from tiredness (not what l would have considered at the time as "fatigue") a few days prior to this l had shown some blood when cleaning my teeth but nothing else I could really put my finger on.




Being diagnosed so quickly after presenting initially with a fungal infection which you would imagine your GP would provide you with some kind of antibiotic or cream to resolve must have come as an enormous shock Paul.

That was certainly the case for me when I was diagnosed wtih my leukaemia - I'd started out by going for a routine eye test to check if I needed glasses after lethargy, headaches and a bit of blurred vision!

Similarly my treatment timetable was presented to me almost immediately and in hindsight the decisions I made were all done at a time when I hadn't really fully got my head round things - everything was such a blur!

Looking forward to reading your next installment and thanks again for taking the time to share your experiences and help us raise awareness of a very rare type of blood cancer.

Make a donation

I would like to give...