I have recently been diagnosed with CML, my WBC was 290 when I started treatment 5 weeks ago. After 1 week on chemotherapy tablets it dropped to 260. In week 2 I started on Glivec as well as the chemo tablets and after two weeks it dropped to 60. By week 4 my WBC had dropped to 5 and i was told to stop taking the chemo tablets and just take 400mg of Glivec. I have been off the chemo tablets for 5 days and just had a blood test that has my WBC at 3.1.
My questions are
1) After coming off chemo does it take a while for your WBC to settle at the right level on Glivec
2) Do you think I stayed on the chemo tablets too long, I guess I could have stopped them at WBC 10 and not 5 but if your only having blood tests once a week it's easy for them to go too low I guess
Still learning about everything so these maybe very basic questions but thanks for any help.
I would be interested in attending any awareness days if people or the charity have them.