Jean jA.
Posted by

LGl

 Jean jA.
Posted by
19 Sep 2016

More I formation about Lgl

I was diagnosed with Lgl about 5 months ago. I am a 65 year old woman. I have had an infusion of immunoglobulin  and a course of cyclosporrin. Neither has worked and I am now on a wait and see programme. I attend my haematologist every twother months to check my bloods. I would be interested to see if anybody out there has Lgl and what there symptoms and treatmentsee are like. Hope there is some body out there   jean

Comments

Eleanor Baggley
27.09.2016

Hi Jean, thank you for sharing this blog. I'm so sorry to hear about your recent diagnosis - I can only imagine how difficult this must have been for you. How are you finding being on watch and wait? I don't know whether you would find it helpful, but we have a factsheet on LGL and a booklet on Watch and Wait which explains why it's a useful option. 

Watch and Wait: https://bloodwise.org.uk/sites/default/files/documents/Watch_and_wait_pa...

LGL Factsheet: https://bloodwise.org.uk/sites/default/files/documents/large_granular_ly...

If you're interested in connecting with others who have LGL, the UK LGLL Group on Facebook could be a good place to start. You can join the group here: https://www.facebook.com/groups/976975605669939/?fref=ts. The orgainsers of the group generally run annual events too.

I hope this information is helpful. Please know that we're here to support you in any way that we can so don't hesitate to get in touch. We're around on our Support Line, 0808 2080 888, or email us on support@bloodwise.org.uk. Very best wishes, Eleanor