I was diagnosed with RAEB2 in late November.
I was absolutely shattered by my diagnosis and I no longer have much confidence in my GP who was treating my more or less continuous sinus infections, which I had for nearly 2years with continued doses of antibiotics to no effect.
I was experiencing nosebleeds and bruising. I had a full blood count which one of the other doctors in the practice advised me that I had a bone marrow problem. When I saw my own GP about this he said it was nothing to be concerned about.
Unhappy with this conflict I paid to see an ENT consultant who immediately referred me to a senior haematologist and the correct diagnosis was made.
I understand it is incurable and am now undergoing chemotherapy at my local hospital, my third cycle starts next week. I am being treated with Azacitidine for seven days in every 28. Fortunately I do not have any adverse side effects from this.
I have no pain and feel fit and well, but I feel that my life has hit the buffers.