Maria G63
Posted by

My 1st appointment

Maria G63
Posted by
27 Apr 2016

So after the initial shock and the wasted time on Google it was time to see the person who could give me the answers to my questions....

So Its July 2014 my first appointment is looming. I decided to confide in my boss who is also my friend, I didn't know how long my appointment would last or whether I would have to have any future treatment so it made sense to inform her that I might need time out to attend. It was hard telling her this from a friendship point as she was shocked and also sad that i had kept it to myself for so long. I need to say she has been a rock and I don't think id be coping as well without her support. I go for my 1st visit. Its quite hard as I'm used to being staff not a patient, I recognise the consultant and she recognises me which was quite funny as we made a joke of me skivving from duties. That was the turning point for me. She told me everything I needed to know. She explained the condition,how it was at the early "watch and wait" stage, the way it would be monitored and what to expect if I reached the stage of needing treatment. I had blood tests, was booked for a CT scan and chest X-ray and assigned a specialist nurse. I was given some factual information and booklets (much less daunting than Google!) and an appointment to come back in 3 months. I thanked her and left collecting 3 extra booklets.
I went back to work and after a chat and coffee with my boss/friend carried n with my work; doctors to organise patients to see...........

Well now I knew what I was dealing with, the next step was telling the family.This was the hardest bit, telling my 4 children (30, 28 27 and 25) especially after the traumatic time we had all been through with my son and his cancer. Telling my partner was going to be equally difficult as I was well aware he lost his Dad to leukaemia. Do I tell them? What do I tell them? How to  tell them? Time to phone another friend who just so happens to be my children's father/ my ex husband,sounds odd? We are great friends and firstly we are parents. I filled him in briefly and told him to be on hand for them as they would probably want to offload on him. My decision was made that I was going to tell them on a need to know basis and keep them updated as and when. I asked them to all come round so I could tell them together as I didn't think I could cope with going through it over and over. I explained the diagnosis and what was happening next and cue the extra booklets I had picked up. I felt no need to go into the what might /might not happen and kept it to what is happening now. After some tears and  some much needed humour from my oldest I had done the hardest part.
My partner was the next hurdle. Id sewn the seed that I had an appointment about my tiredness and bruising so I knew he would ask when he came back from work. I knew hearing the word "Leukaemia" was going to be difficult for him so I changed it to a blood disorder. It didn't help, he'd seen the booklet one of the kids left on the kitchen table. I told him how things had changed and how monitoring worked and that it would all be ok. Id convinced myself it would all be ok..