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My Condition, My DNA - Shaping genomic sequencing uptake in UK healthcare

The Bloodwise logo. Bloodwise appears in black text against a white background
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11 Nov 2015


The NHS Genetic Alliance UK are looking for patients to participate in a series of engagement sessions to find out more about how cancer patients and their families feel about the introduction of genomic sequencing.

Each session will last no more than 45 minutes delivered over the course of 6 weeks and will be a mixture of interactive tutorials, where you will answer survey-type questions or be asked to make decisions in hypothetical scenarios; and live chats, where you can pose questions and make comments.

The sessions will begin in January and you won't have to go anywhere to take part as all of the sessions will be delivered using free online applications -  all you need is a laptop, smartphone or other device connected to the internet.

The findings of the sessions will be fed straight back to those making decisions about how genomic sequencing could be used by the NHS in the future in the form of a Patient and Family Charter and is an opportunity for blood cancer patients to shape decisions about how genomic sequencing might be incorporated into the NHS in the future.

More information on the project is also available in Genetic Alliance UK's blog. You can register your interest here: https://www.surveymonkey.com/r/MCancerMDNAReg

If you have any questions about gene sequencing or the project please don't hesitate to contact Angela Wipperman on 020 7704 3141 or via email at Angela.Wipperman@geneticalliance.org.uk.