Matilda S
Posted by

Myeloma Awareness Week starts today

Matilda S
Posted by
21 Jun 2013

We're proud to be supporting this year's Myeloma Awareness Week, to highlight the important work that Leukaemia & Lymphoma Research and Myeloma UK, as well as other charities and health professionals do to improve the lives of patients with myeloma, as well raising awareness of the issues that we still need to address.

Improving survival and quality of life for patients with all blood cancers is our one priority. Myeloma is a rapidly developing research field and as such the landscape of the disease is changing. 

As recently as 20 years ago, myeloma was an unmanageable disease and the treatments available were fairly rudimentary. Today, thanks to investments made by charities like Leukaemia & Lymphoma Research, treatments have improved, life expectancy has been prolonged and patients can live for many years. We are pleased to be able to share some stories from patients as part of Myeloma Awareness Week and would welcome your stories too, if you're happy to share them with us.

However, there is still no permanent cure for myeloma, which affects around 4,000 people in the UK every year. The blood cancer is also linked to a very painful and debiliating side effect, myeloma bone disease, which is caused by the accumulation of myeloma cells in the bone marrow and affects around 90% of all patients. Leukaemia & Lymphoma Research has recently released a new patient information booklet on myeloma to explain the diagnosis and treatments available to patients - you can order or download a copy via our patient information pages.

Leukaemia & Lymphoma Research is currently investing around £4 million into research projects and clinical trials to inspire new and better treatments and drive improved diagnosis for myeloma patients. We have been pivotal in pioneering new treatments that both prevent and relieve this bone pain, as well as alluding to potential curative treatments for the blood cancer itself. 

This research is fronted by Dr Andy Chantry, who leads the Sheffield Myeloma Research team at University of Sheffield and is one of the world's leading authorities on myeloma bone disease. Andy is also a clinician, who treats patients and is passionate about doing all that he can to improve survival and quality of life in blood cancer.

We are pleased to announce that Andy (in the centre, above) will be joining us for a live Q&A on facebook at 1pm on Thursday 27 June, as part of Myeloma Awareness Week.

If you have any questions for Andy on myeloma, treatments, research, trials, or even what its like to be a blood cancer researcher, we'd love to hear from you. You can share your questions with us on our facebook, twitter (using #MAW2013) or by contacting us at

All pictures are courtesy of Sheffield University.


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