Posted by

One Month to Go

Posted by
27 Aug 2015

Recently I have been a bit preoccupied with trying to increase my fitness levels. I work out at least 6 times a week and have started to notice that sometimes my illness slips my mind. Great! you might say, but not great when I have almost forgotten to take my meds a few times.

I decided to get one of those little pill boxes with the days of the week labelled to help me remember and I now have THREE reminders on my phone.

I've also changed the time I take Imatinib. Previously I was taking it at breakfast but the sickness was sometimes too much to bear so I've changed to lunch. i can make sure I have a substantial feed with plenty of protein and lots of water. Water definitely helps the sickness lesson, so much so that on the odd occassion I questioned whether I had taken it. That's when the little pill box comes in handy. When taking Imatinib at breakfast time, I was able to tell if I had taken it because the nausea would be a sure sign. I think this was because the meal wasn't big enough being someone who likes to have a light breakfast.

I forgot to update on my CML levels and I am pleased to report they were 3% at my last blood test. They have come down from nearly 100% in 6 months so I am totally happy with that. Although i am aware this does not mean I'm out of the woods yet, there's no point worrying about something that hasn't happened, so i'll take the good news and run with it for as long as I can. 12 miles in fact! Thats how long the Tough Mudder course is....Don't forget to donate x



Thanks for the upate Jackie.

You wouldn't be the first one to almost forget to take treatment and you certainly won't be the last. The key is to establish a routine and the pill box is EXTREMELY handy and recommended by many patients.

Every one's routine and coping mechanisms are different but it certainly sounds like having the pills at lunch time is helping with the nausea for you which is fantastic.

Great to hear that the CML levels are dropping so quickly - long may that continue to be the case! Good luck with the training and thanks so much for everything that you're doing to help us beat blood cancer.