Our approach for the Patient Need Programme is designed to allow us to work iteratively, and continuously build and extend collaborative relationships in order to access further data and analysis sources.
We know the landscape we're working in and blood cancer patients' needs are always changing. This programme will reflect that. It will be a continuous process of listening, mapping, prioritising and feeding our new insight into our research, fundraising, policy, media and patient benefit teams.
Our approach involves;
We'll be listening to patients and their families in focus groups, through our online community and via surveys, to gain first-hand knowledge about what they need.
We'll also be listening to the opinions of experts at the top of their fields in academia, government, and other cancer charities - the very best people when it comes to research, clinical care and policy know-how.
2. Gathering data
We'll add insights from data shared with us by a wide range of sources, including Haematological Malignancy Research Network (HMRN), National Cancer Intelligence Network (NCIN), Department of Health and NHS patient experience surveys, as well as many others.
We'll continuously be mapping the landscape in terms of blood cancer provision and policy and finding out where the gaps are - what's already being done, what isn't and what could be done better.
We'll be identifying priority areas to enable Leukaemia & Lymphoma Research and the sector to have the biggest impact for patients.
This is a continuous process and we will be continuously reporting back to our research, patient services and policy teams in order for our findings to inform our patient impact strategy.