John Reeve
Posted by

Patient & carer representatives wanted for clinical studies groups

John Reeve
Posted by
21 May 2015

Do you want to get involved in helping to design and deliver clinical trials for blood cancer patients in the UK?

All new treatments and drugs for blood cancer patients in the UK are subject to rigorous testing and evaluation via clinical trials. The National Cancer Research Institute (NCRI) is responsible for the operation of 23 Clinical Studies Groups (CSGs) which oversee the design and delivery of clinical trials across all cancer types as well as cross-cutting areas such as Primary Care.

For the last five years, alongside my role as a trustee of Leukaemia & Lymphoma Research, I’ve been a Consumer (Patient or Carer) Representative on the Haematology Oncology CSG and played an active role in the work of the Group. We oversee the design and delivery of clinical trials for all blood cancers except lymphomas with the second largest portfolio of trials of all CSGs. Now someone else needs to take over this role and I’m keen to encourage patients and carer to consider applying.

When I applied for the role, I had little knowledge of the biology or treatment of blood cancers apart from my experience of caring for our younger son, Tim, in his battle with ALL. Knowledge of research techniques or a background in natural sciences is an advantage but by no means essential. I had very good induction training and the support available now is even better. Candidates need to be able to attend 3 meetings per year as well as occasional requests for written comments and tele-conferences. Previous experience of working on committees and/or evidence of good communication and influencing skills is desirable.

More information about the role including an application pack is available at: - the closing date for applications is May 29th.

If you’d like to ask me any questions, I’d be very happy to respond via the blog or you can contact me directly on 07793 072576. If you want to help other blood cancer patients and make a real difference, this is a great opportunity.



Hi John,

I'm interested in this role, however the link doesn't seem to work, can you help or point me in a different direction?

Many thanks,


Hi Sarah,

Thanks so much for getting in touch and shwoing an interest in the role. Not sure what was happening with the initial link in John's blog but you can now access all the information you need here:

Thanks and good luck with your application!


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