Gill M.
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Patient & carer representatives wanted for clinical studies groups

Gill M.
Posted by
30 May 2017

Do you want to get involved in helping to design and deliver clinical trials for blood cancer patients in the UK?

NCRI Haematological Oncology CSG Annual Trials Day Consumer Member Talk 1

 

“All new treatments and drugs for blood cancer patients in the UK are subject to rigorous testing and evaluation via clinical trials. The National Cancer Research Institute (NCRI) is responsible for the operation of 18 Clinical Studies Groups (CSGs) which oversee the design and delivery of clinical trials across all cancer types as well as cross-cutting areas such as Primary Care.”

 

Two years ago, Bloodwise Trustee John Reeve posted these words on the Bloodwise website. After being involved for the previous 5 years, John was encouraging patients and carers to step into his shoes as a Consumer (Patient or Carer) Representative on the Haematology Oncology CSG.

I read John’s post with interest: prior to my diagnosis with acute lymphoblastic leukaemia, I had studied and worked in biomedical research, first as a lab researcher and then in the management of funding and delivering medical and clinical research. Through these roles, I had heard of the NCRI, and knew also of the importance of Patient and Public Involvement (PPI) in the design and delivery of clinical research.

With support and encouragement from John, I applied for the vacancy and have spent the last two years as a Consumer Member for the Haematological Oncology CSG. I have thoroughly enjoyed playing an active role in the work of the group.  We oversee the design and delivery of clinical trials for all blood cancers except lymphomas, and have one of the largest portfolio of trials of all the CSGs. There is now a vacancy for a second Consumer Member for the Haematological Oncology CSG and like John, I’m keen to encourage patients and carers to consider applying.

 

Although I have previous research experience, a prior knowledge of research techniques or a background in natural sciences while an advantage, is by no means essential: there is very good induction training, and excellent peer-support from the NCRI consumer community. In addition, both scientific and consumer mentorship are also provided. The role requires an interest in cancer research and personal experience of cancer or caring for someone with cancer. Candidates need to be able to attend 3 meetings per year as well as occasional requests for written comments and tele-conferences. Previous experience of working on committees and/or evidence of good communication and influencing skills is desirable.

 

There are also vacancies for consumer members for the Lymphoma CSG and the cross-cutting CSG – Psychosocial Oncology and Survivorship.

More information about the roles including an application pack is available at: http://www.ncri.org.uk/patient-and-public-involvement/join-us/

 

The closing date for all applications is Monday June 5th. Interviews will take place during the first 2 weeks of July.

If you’d like to ask me any questions, I’d be very happy to respond via the blog or you can contact me via Bloodwise (020 7504 2200). If you want to help other blood cancer patients and make a real difference, this is a great opportunity.

 

NB The NCRI is a partnership of organisations that fund cancer research in the UK, and who want to work together to coordinate their research. In doing so, they aim to avoid unnecessary duplication and maximise the impact of research for cancer patients and the public. Bloodwise is a Partner member of the NCRI.

Photos are of Gillian Murphy giving the Patient Representative update at the NCRI Haem. Onc. CSG Annual Trials Day 2017 (photo credits: Rich Castle).

 

NCRI Haematological Oncology CSG Annual Trials Day Consumer Member Talk 2