Esther Dark
Posted by
Esther Dark

Read our new fact sheets on rare blood cancers

Esther Dark
Posted by
Esther Dark
31 Jan 2017

Finding out you have blood cancer or a blood related condition can be difficult to understand. You may be given and told lots of information, which can be overwhelming and hard to process. You’re not alone.

Finding out you have blood cancer or a blood related condition can be difficult to understand. You may be given and told lots of information, which can be overwhelming and hard to process. You’re not alone.

Last week we were very excited to tell you about the launch of our new fact sheet range – snappy pieces of information on a range of information, from understanding your diagnosis to treatment decisions, for you to download and print or read online. This means you can access the information which matters and is applicable to you.

The fact sheet range, written in partnership with clinicians and people who have had blood cancer have been certified by the Information Standard process, so that you know you can trust them and understand them.

This week we want to tell you all about the hairy cell leukaemia (HCL) and chronic myelomonocytic leukaemia (CMML) fact sheets. Both of these are conditions are rare types of leukaemia – around 100-200 people will find out they have HCL each year and around 450 people find out they have CMML each year. Due to the rarity of these blood cancers, there is little trusted and accurate information available for people affected by blood cancer and their families. We want to make sure that anyone diagnosed, with any type of blood cancer, gets the information they need, when they need it.

You can read or download the Hairy cell leukaemia (HCL) fact sheet here.  Or, you can read or download the Chronic myelomonocytic leukaemia (CMML) fact sheet here.

These fact sheets will be followed by updated information on:

  • Large granular lymphocytic leukaemia (LGLL), and,
  • Monoclonal gammopathy of undetermined significance (MGUS).

Keep an eye out on our patient booklets page for more fact sheets over the coming months or email us on information@bloodwise.org.uk for more information on our patient information.