Bill G.
Posted by

Recently diagnosed NHL mantle cell.

Bill G.
Posted by
03 Oct 2016

Newly diagnosed with NHL mantle cell.

Hello, my name is Bill and have recently been diagnosed with Non Hodgkins Lymphoma, mantle cell type and at Stage 3 ( unless my upcoming bone marrow biopsy proves different).  My Doctor has spelled out what to expect but it is difficult to take on board. It all seems a bit surreal for now but I know it will sink in eventually. I have found some very useful information and help from different websites and some of the blogs I've read so far on this site have been very useful allaying fears and concerns I  have. The one thing I have noticed is that you are all so positive which I find very encouraging and supportive. It's as though I have suddenly found a completely new bunch of friends and am looking forward to haering more from you. This is my first blog post and hope it won't be my last and would like to wish everyone suffering from this horrible curse the very best of luck.I will probably write more when I become a more experienced member of "the club" but this is all for now. Just to say thanks to Bloodwise for existing and all the other support networks.   Thanks again,  Bill G.

 

 

Comments

Lizzie Goates
06.10.2016

Hi Bill,

Thank you so much for your blog and kind words. I cannot begin to imagine what you are going through and I am very glad you have found other people’s blogs helpful and supportive. I just wanted to let you know as well that our patient experience team are here to listen and provide support too and you can contact us on 0808 2080 888 or email us at support@bloodwise.org.uk. We have a bit more information about our team at https://bloodwise.org.uk/we-help We know from speaking to others that many worrying thoughts can run through your head when diagnosed with a blood cancer and often it can make you feel alone or isolated. Sometimes it can really help talking it through with someone and I really would like you to feel we are here to do this via phone or email.  I hope you also have lots of support from friends and family around you and please do get in touch if need be. Take care Lizzie

06.10.2016

Just had the formula/recipe for my upcoming chemo changed to replace vinchristine with Bortezomib (velcade). My specialist decided to do this after her MD Team meeting. It means that I have to attend twice per week but as my local hospital is only 15 minutes away from home this isn't a problem. I wondered if any one knew anything about this as it's not normally available on the NHS but is in trials.