Well my lovely Bloglets,
Three weeks into my new drugs or three weeks after starting my new drugs, that’s probably better English. Anyways. Three weeks.
I started on 100mg a day which is a fifth of the standard dose as I’m what they call a ‘sensitive responder’, which is good as it means the drugs work, but also means they tend to take it out of me a bit. As you all know if you are a regular reader of this. 100mg seemed to be fine so after a week I upped it to 200mg as told to by my consultant. At some point, I can’t remember when, I started to get prickly and itchy skin. Not good. When that happens I tend to freak out a bit as that was the first sign that I was severely intolerant to the first drugs I was on. And ignored. Then I started to feel sick. I’m lucky, I have a pretty solid stomach and rarely feel sick, unless I have eaten too much but that’s a slightly different feeling. This was properly feeling sick. Which wasn’t great. It also seemed to be, I discovered, that when I felt sick it was also because I was hungry. In the beginning I didn’t want to eat as that’s the normal thing when you feel like that. I can’t remember why I decided to eat when I felt like that one day, but I did and the nausea went. Weird. Yesterday I was given a booklet on my new drugs. Side effect number one. Nausea. Side effect number two. Itchy skin. And it all made sense.
I don’t know if I’m still as tired – it’s hard to gauge at the moment whilst I’m between flats as my life is much quieter than it normally is as I tend to chill out at the parents more than when I’m in London. I’m still getting the shooting pains in my head which are a fatigue signal, yet in the evening I don’t feel tired until much later and seem to be waking up after 9/9.5 hours which is about an hour earlier than I was a couple of weeks ago. I’m not sure if my body signals are just a bit confused at the moment as the hungry signals seemed to go and nausea was the new feeling for eat something. I am also drinking caffeine later in the evening than I used to, which may be because I’m tired but am not recognising it.
Anyways, back to 100mg and a check-up in 4 weeks. I was meant to be back in 3 but I have my pre-procedure assessment. Oh and on the I MIGHT HAVE CERVICAL CANCER FREAK OUT!!!!!! My letter finally arrived from the clinic about 2 weeks late, well done Royal Mail *slow clap* and it clearly says in the letter don’t worry about cancer. So. Relax and breathe. I feel like a bit of an idiot about my reaction now to be honest.
I think that’s it really. I also finally met my clinical nurse specialist who is wonderful. Got a lot of love for her and my consultant. My consultant also swore in my consultation which made me laugh and then of course I removed my filter and my standard language resumed.
I looked at a flat last night, waiting to hear, fingers and toes crossed. I need to be back in London. Been feeling a bit displaced and low because of it.
With love and hope,