MJN
Posted by
MJN

SCT and beyond

MJN
Posted by
MJN
03 Oct 2014

There are certain things in life that you simply cannot prepare for, dream of or consider until they creep up and hit you hard in the stomach. 18 months ago I was diagnosed with Hodgkin Lymphoma at the age of 33 and over night felt as if all the things that defined me evaporated and I became Mark, the guy with cancer. Poor sod. It did not take me long, however, to decide that cancer would not define me and I've been fighting it ever since with the immeasurable support of my wonderful family and friends but most of all with the astounding strength and will of Alison - my wife and guardian angel.

Today is known as -6 because it's 6 days before I get my new immune system on Day Zero. From there on in I'm in the hands of the incredibly brilliant medical team at St James' Hospital in Leeds - Jimmy's. 4 weeks in isolation? Perhaps 6? It's not the same four walls that worry me, it's the food; a subject upon which I may write extensively as it is, quite simply, dreadful. On the back of the bathroom door there is a document known as the Bristol Stool Chart which is used to describe one's stools. It can, though, also be used to describe the food. eg. Tonight's dinner of fish and chips consisted of breaded "fish" - a type 3 fish, long and sausage shaped with a cracked surface and peas - type 6 peas, fluffy and mushy. Cuppa - type 7, brown and entirely liquid. You get the idea.

I will attach a copy of the chart for reference and sign off for tonight. 

If you've recently been diagnosed with Hodgkin lymphoma and have yet to receive treatment you could be eligible to take part in a new clincial trial. Read more here.

Comments

Anonymous
03.10.2014

Wow you are such a strong person (also your wonderful wife Alison) not a day goes by when you are mentioned at home or school (always good) and your always in our thoughts!!! When you call in to school it always leaves us all with a big grin we love to see you. Well I will bombard you with photos of random things lol to keep you smiling!!! :-) xxxx can't wait to see the stool sample chart

Anonymous
04.10.2014

Mark I had the best care in Leeds St James and without their help I wouldn't be here today, they are a great and dedicated team who will fix you up, I walked a lonely path till they took my hand.......I wish you and Alli well

Anonymous
05.10.2014

Dear Nobby, Intergalactic Love Sensation Phil Larkin here wishing you all the best. Most people crumble with stuff like this, keep being a champion. Living in Dubai at the moment and it's not a bad life. Keep on keeping on and as my dad would say 'never let your danglers, dangle in the dust'.

Praying for you,

Phil

Anonymous
05.10.2014

Hey Mark!!! Great to see and read your blog!!!! Witty as ever and an added bonus with the stool chart!!!! We are thinking of you and know it won't be long until that fanfare music is playing for you on your return home! (Just don't break a bottle on the way up those crazy steps of yours!!!) with much love, Rachael, Andy and Sam xxx

06.10.2014

Good luck ahead of Day Zero, Mark, and hang in there with the food! It isn't the best but you'll need to eat it to get your strength up so that you can give your body the best possible chance to take to the new marrow and produce the healthy white blood cells that will get you out of that hospital room as quickly as possible.

I was in for just under a month when I was there and made sure I had loads of visitors and got things like an exercise bike brought in as well as loads and loads of DVDs and books to stop me from going insane!

Thinking of you mate and well done on documenting all of this - it'll be so useful to so many others going through treatment or about to go through a transplant. I know I'd have really benefitted from being able to read a blog like this when I had my treatment.