Alison Park
Posted by

Shingles

Alison Park
Posted by
17 Jan 2016

Shingles and chemo brain!

In September at my post 2 year but check-up my consultant said I could come off my last drug- aciclovir. I was so pleased as it seemed like a real step forward to leaving all of 'this' behind me. He did tell me to look out for shingles which is obviously a possible downside to coming off aciclovir. After a couple of months with no signs I was feeling extremely pleased with myself. The lead up to Christmas was busy and I obviously worked myself harder than I thought as on the 29th I started to feel a strange burning sensation inter spaced with pins and needles and sharp stabbing pains. My consultant had told me what to look out for and I rang the fab team at the freeman who confirmed that it probably was the first signs. I didn't have any spots at the time but started on my emergency dose of aciclovir immediately. I didn't start to get the rash for another 24hrs. 

I have to say that I was quite unprepared for how painful it has been! I think everyone has a different experience with shingles but I certainly haven't had a pleasant one. Ouch! After almost 3 weeks I am finally starting to pick up and feel better. I feel quite aggrieved actually ...how dare it upset my getting back to reality! Seriously though, do look after yourself and act quickly if you do think you might have it. So I'm back on aciclovir for another six months now, small price to pay to avoid any reoccurrence. I have just been reading a blog about chemo brain and would completely agree with all of it. I too can't remember the names of everyday objects, people, what I'm saying etc. It has got better but hasn't gone away completely yet. I write everything down now so I don't forget appointments etc...although I sometimes forget to look at that too! Try not to get to frustrated with yourself, just be thankful for what we have got.