So I am back in hospital, about to start the next chemo after a day of lying around waiting for nothing. First we had to wait for someone to take blood as when I showed up they seemed to have no idea I was coming, then we had to wait for those results to see if I was strong enough for the lumbar puncture. Mum and I sat and chatted to Ed for a couple of hours until we found out I was being readmitted. They put me in Ed’s old room which was funny as Ed was hoping to get this room back whenever he is admitted again!
Then I felt reaaallly tired so I just had a nap while I waited for the lumbar puncture slot at 1.30. An added complication which showed up on the manual blood test is that my blood has been thinned by one of the chemo drugs so guess what? That means no lumbar puncture! It felt like we’d wasted a whole day sitting around, but now we are pressing on with the next round of chemo despite not being able to do the lp yet. They’ve booked to do it on Friday and are pumping me with vitamin K in the meanwhile to see if they can sort my blood out.
The results of the MRD showed me to be high risk, so I’m switching to regime C. That means a longer treatment and it’s slightly annoying but if it means less chance of relapse and zapping every single bad cell then it will be worth it.