Moss J
Posted by

Still no blood recovery

Moss J
Posted by
03 Jun 2015

Having one of those days. Been hospital 8 weeks now with 2 cycles of chemo. Day +16 from FLAG IDA and still no sign of any blood count recovery. Feel like I'm never going to get out of here!

Comments

03.06.2015

Hi Josie, 

Sorry to hear that you counts aren't picking up. Thinking of you and sending you some positive blood count vibes! As Andy said - don't hesitate to contact us for anything. 

Lauren 

Anonymous
03.06.2015

Keep fighting for every inch. You will get through this. Keep those positive happy thoughts in your head. You are amazing. Always believe. I will, I can.

Anonymous
03.06.2015

Words honestly cannot describe what I want to say to you. I've never been in such a position and so I don't know what to say.

Always remember that you're a fighter and that you're amazing.

Praying for you xx

03.06.2015

How frustrating Josie!

I really wish that there was something more I could do to help other than say that I'm thinking of you and have everything crossed that the blood counts pick up soon. You're a fighter and have got so much to fight for with your family and I know you'll never give in. Keep us updated and if you ever want to talk to someone please don't hesitate to get in touch.

Anonymous
03.06.2015

Hi there, I really hope your blood count picks up soon I know how you feel as I had APML Leukaemia now in remission for nearly 5 year, I was in for 6 weeks before my count went up not as long as you but still felt stir crazy. Just remember that you're in a good place where the docs and nurses are working hard to bring you back to full recovery to fight the dreadful disease, I know it's hard for me to say but stay strong and sincerlely hope you get well soon hopefully things will pick up soon. Take care.

Anonymous
03.06.2015

Hi Jossie,
I don't know you but thought I'd try cheering you up after seeing this post.
Never give in to it & all of a sudden over night your blood count will surprise you.
I'm sure you have great family & friends around but after my Dad had AML I know how isolating being stuck in hospital is so thought I'd drop you a line

Anonymous
03.06.2015

Keep going my dad had aml and fought until the end. Please keep positive thoughts. Your not alone. hope your counts pick up soon.

Anonymous
03.06.2015

Come on Jossie you can do it!! Stay strong and keep fighting!! I've had 2 cycles of FLAG IDA too before my stem cell transplant in March of this year!! Positive mental attitude plays a strong role!! You CAN do this!!! Get those boxing gloves on and fight like you've never fought before!!! Altho I got a sad at times I refused to give up!! Get those GCSF injections in your tummy and get strong!! Heaps of positive vibes sent your way!! Xxxxxx

Anonymous
03.06.2015

I´m thinking of you. I had the same and I won. You also will win! Good wishes from Germany!

Anonymous
03.06.2015

Praying that our Lord Jesus makes your blood thrive and fixes the ATP process in Jesus name amen <3 pulling for you. smile on <3

Anonymous
03.06.2015

Hiya Josie

I felt I had to send a wee message to you after coming across this as your long stay brought back memories for me. I too was diagnosed with AML a wee while ago now and after my third cycle of chemo,which included the drug Mylotarg, my counts were floored for 7 long weeks.They slowly crept back up and I finally got home for some recovery time. Please keep your spirits up im sure your family is a huge support to. Tomorrow I celebrate 11 years in remission as well as my 32nd birthday. Keep going...its a long road but keep fighting!
Laura xx

Anonymous
03.06.2015

Stay strong the road may look long but people are thinking of you and wishing you well xx

Anonymous
03.06.2015

Hello and here's a greeting from a fellow AML mom! AML does strange and different things to individual patients, so perhaps it's not scary news but rather just how you personally are experiencing it. I thought about being a strong mama for my family every day in my long hospital stay, and I hope you do, too. When you do go home, you will be so happy, so plan for all the warm and fun things you'll want to do just being with your kids. Anticipating family time can make you feel better, I hope. My experience included 5 rounds chemo and it took a long time for my neutrophils to recover each time. And now, 10 months since diagnosis, I am happy at home and feeling stronger every week. Your attitude of being strong for your family will definitely put some more fight in each day. Maybe you and your kids could write letters, notes, draw pictures, etc. for each other to help all of you feel more connected while you are stuck in there. Never, never, never give up! All the very best to you and soft, warm hugs!

Anonymous
03.06.2015

thinking of you, sending positives vibes - hope they rise soon

03.06.2015

I feel so sorry that things are not working out as planned. I hope your doctors can get to the bottom of what is happening and treat accordingly very soon. My best wishes go to you and your family.

Anonymous
03.06.2015

Hang in there beautiful, better days are coming! xox

Anonymous
03.06.2015

Hi Josie, I know exactly how you must be feeling.....I also experienced the same frustrated feeling as another day went by & still I was at 0. Think I must have had one of the slowest recoveries ever, but there is light at the end of the tunnel & I'm living proof of that. I've been in remission now for 18 months :-). Stay strong & focused & you will make it through, that I can assure you of. Anytime you need a chat or to let off steam, I'm always willing to lend an ear. Sending you virtual hugs, Angela x

Anonymous
03.06.2015

Hey Jodie, keep your chin up toots, I've got nhl and gave still yet to start my treatment, I know it's a long road for you but don't give up? You can do it x

Anonymous
03.06.2015

Hello! I too had AML three years ago - wrote a blog! This might cheer you up :D

rachelbouncingback.blogspot.com

I hope you get out soon xx

Anonymous
03.06.2015

Dear Josephine
No one but really knows what you are feeling, this is never easy but you have to still positive. Your bone marrow is still recovering and keep in your mind that good things make us wait for them. You are young and a very strong woman. Fill your mind with happy thoughts.

Im sending You a huge hug around the world with my best wishes for your recover

Go girl!!!

Anonymous
03.06.2015

Have faith and hang in there...In one point of my life my counts were451,000....so anything and everything is possible...keeping you in my prayers

Anonymous
03.06.2015

Josie I am so sorry your bloods aren't going up. Being stuck in hospital for weeks on end, having to see family and friends leaving after each visit when you cannot escape is really tough. Am thinking of you and willing your bloods to start to recover. I was diagnosed with AML in April 2012. I had a BMT in August that year and am still here, wary but happy, getting fitter and stronger and more ordinary by the day. Be kind to yourself, rant and rage if it helps, and I hope you get even a little comfort from hearing from fellow leukaemia patients - past and present - and knowing that we are rooting for you.

Anonymous
03.06.2015

Hi Josie. I had AML & am now almost 13 years post transplant after spending the best part of 6 months in hospital, with a young baby at home. My first cycle of chemo didn't work either, but the second did the trick. It's really, really tough going through the the treatment and I remember so well waiting every day to see if my neutrophil counts had gone up, so totally understand how frustrated you must be feeling! Hang in there, the treatment can and does work, can just take a bit of time. Sending love and best wishes xx

Anonymous
03.06.2015

Sending love n hugs, stay strong, keep positive, bloody hard but you can do it. Xxx

Anonymous
03.06.2015

Try and keep posative,it must be disheartening when there is no sign of progress.But I am sure you are in great hands and results can change.Stay hopeful it will change for you. Fight it young lady.x

Anonymous
03.06.2015

Stay strong Josie! Cancer and I have been doing the "dance" since 2006.By the Grace of God, a great medical team and a wonderful support group, I am still here and kicking!

Anonymous
03.06.2015

Hi Josie
Stay strong! It must be really hard. I did 6 months of chemo so I know what you mean. There is always light at the end of the tunnel - just needs more looking for sometimes!!
You are by no means alone - keep fighting!

Anonymous
03.06.2015

Am so sorry you're having to go through this trial. A friend reminded me today that we need to focus a lot more on the good days so we can get through the bad ones. It might help if you start journal and try to write at least one positive thing a day in it. Don't be afraid to ask for help from your friends, family, and any others acting as your support group. My mom has had cancer since 2002.She continues to fight daily, and you need to as well. Our thoughts and prayers are with you and your family.

Anonymous
03.06.2015

Hi Josie,

Something's take their own time I guess and maybe that's the case with you and when they do come up they should be all the stronger for it. Remember you are unique and that makes you special. Hang in there. Like Andy et al, I'm thinking of you and sending positive thoughts.

Dave

Anonymous
03.06.2015

Josie,

Well that sucks! Will keep you in our prayers that they will go up and you get to break out of there soon :) Keep your head up & keep fighting. Lots of people are thinking about you and praying for you.

Anonymous
03.06.2015

Thinking of you, stay positive x

Anonymous
03.06.2015

2 months it took for my bloods to come back after my first course of chemo. I was neutropenic for a month and a half! I did wonder if they would ever recover. Each round, it was slow recovery. 4 rounds I had, 7 months in hospital. That was 2013, I left the fantastic ward in oct 2013. It took 12 months to get back to 'normal'. I have a great quality of life now, get tired, yes but I feel great.
Slowly but surely! Step by step. You'll get there for sure. Relish every moment you spend beating this thing xx

Anonymous
03.06.2015

You'll be fine... Give yourself some time to recover, nothing happens over night. We are fighting for almost three years with ALL, some ups and downs, but in the end - we'll be fine. By "we", I mean my kid, who was diagnosed at 9 months and now is 3,5 years old. Jumping and laughing all over the place :) Sending our best wishes!

Anonymous
03.06.2015

Cheering for you Josie. Leukemia doesn't own you. Go kick its ass.

Anonymous
03.06.2015

Prayers for you Josie! You are a beautiful strong person ! Saying prayers for right blood my dear. Love from Wisconsin

Anonymous
03.06.2015

I'm not sure if Flag is the same as Flad..but it was high dose fludarabine combined with mitixantrone and a few others. .but regardless of the drugs. .over 30 days before count recovery so please don't think they won't recover! ! They will! ! Just try to be positive try to eat and try to look after yourself as best you can in there. Xxxx

Anonymous
03.06.2015

Thinking of you. I was in for nearly 14 weeks first time! I will be 4 years out of treatment on July 1st. Best wishes x

Anonymous
03.06.2015

Don't worry, they will kick in eventually! I remember the same frustration after FLAG IDA - my counts have always been slow to recover, I think it was around 4 weeks afterwards that they started to pick up. The best thing you can do is try and keep positive and keep yourself entertained with films/books/whatever you enjoy, though I know that's easier said than done. I remember the same feeling of thinking I'm never going to get out of here - but one day they just started to climb up 0.3, 0.4..Things will get better. Good luck!

Anonymous
03.06.2015

Don't worry, they will kick in eventually! I remember the same frustration after FLAG IDA - my counts have always been slow to recover, I think it was around 4 weeks afterwards that they started to pick up. The best thing you can do is try and keep positive and keep yourself entertained with films/books/whatever you enjoy, though I know that's easier said than done. I remember the same feeling of thinking I'm never going to get out of here - but one day they just started to climb up 0.3, 0.4..Things will get better. Good luck!

Anonymous
03.06.2015

Keep hanging on in there, Josephine. I don't know you but thinking about you and praying for you. I have non-Hodgkins lymphoma (early stages).

Anonymous
03.06.2015

Hi Josie,

I wish that there was something that I could say that would make things better for you...I just wanted to send you a message to wish you well, send you love and positivity in the hope that it may help you to know that people do care and are praying for you to stay strong. I hope that your blood count picks up and that you are able to go home to your family in the very near future....xxx

Anonymous
03.06.2015

Hey there beautiful lady, don't ever loose hope, keep fighting, your strength is admirable, so Admirable that complete strangers like me in other countries feel for you, my thoughts and prayers are with you and your family..
Lots of Love from a Stranger in Australia..

Anonymous
03.06.2015

I will be praying for you daily dear. You've got this!! You will best it!! I wish I could push a button and make it all go away but sadly that's impossible. Keep your chin up Josephine...

Anonymous
03.06.2015

Love and healing thoughts beemed your way from me and my family ... we are going through the same thing with our daughter ... Love//Light to you.

Anonymous
03.06.2015

Hi Josie
This message comes from my heart. You are one very pretty girl. My heart goes out to you and your family. Keep fighting. You have a right to be on this earth and to leave your mark. Never give up. I know its hard and some days just pure shit, but you have the strength inside you for the crap days. Rest when you can save up your energy for the days you need it.
All my Love thoughts and strength are sent with this message xxx

Anonymous
03.06.2015

Hi Josie
How frustrating for you that your blood counts aren't up yet. I temember counting the days with my dad after his bone marrow transplant and how long each 24hrs felt. Keep fighting and stay strong, you will get there. Sending you a ray of sunshine from Guernsey. Xxx

Anonymous
03.06.2015

Thoughts and prayers to you as it must be one long day into another. Any day now should be today. Hang in there,i know its easy for me to say, i just really want you to recieve some good news and Can only imagine how hard and discouraging the wait must be. Just hope you feel the people that are with you that you dont know or/and cant see or hear- think of us as angels,you cant see or hear them but you know their there to ward off the bad. Fill your heart with oyr love that were sending you.

Anonymous
03.06.2015

Hi Josie I saw this and felt very emotional. My 3 year old daughter has ALL and has been very poorly for 18 months now with a long way to go. Its horrible in hospital and I can't imagine how difficult this is for u and your family. I hope your count starts climbing soon. You are a very amazing person. Take care luv Ria xxx

Anonymous
03.06.2015

hi josie, my name is geri and i had leukemia back in 1999. in the hospital for 7 weeks and then in new york city at sloan kettering for 4, everyday was a battle but dont ever get down. stay positive. hold on to your faith. prauers work! i will be praying for you. take care, josie. you must fight this devil!

Anonymous
03.06.2015

Stay strong, keep believing, you got this! Faith is believing something, without physical evidence. Relax, knowing that you will see the physical evidence of your healing soon!

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