Being told that your child has cancer can be one of the hardest things you’ll ever hear.
There’s a lot to take in at this time but you’re not alone - there are many people and organisations out there waiting to support you and help you find the information you need.
Bloodwise support and information for parents
Bloodwise offer support to anyone affected by blood cancer and their friends and family. You can reach our Support Line team on freephone 0808 2080 888 (Mon-Fri 10am-4pm).
Some people benefit from talking to other people who’ve been through similar experiences. The Bloodwise facebook page has an active community of parents and families.
Childhood blood cancer information
We have information guides for the parents of children with childhood leukaemia (0-16 years). They’re designed to help you understand your child’s condition and takes through what to expect – from symptoms through the tests, treatments and living with and beyond blood cancer. We currently provide information on:
- childhood acute lymphoblastic leukaemia (ALL)
- childhood acute myeloid leukaemia (AML)
- living with and beyond childhood leukaemia (online only)- including information on telling people and physical, emotional and practical support.
Information for teenagers and young adults
We provide information on some of the most common cancers that young people and young adults get, including:
This info may be relevant to young people over 16 but do keep in mind that everyone is different, and for a young person the treatment and experience might be different from how it’s explained here. You should speak to your hospital team about what to expect and which information is best.
More information and support
There are a number of other organisations that can offer you support:
- Clic Sargent is a charity with a wide range of online info for children, including the story books Joe has leukaemia and Tom has lymphoma.
The Children’s Cancer and Leukaemia Group is a charity providing a range of information about and for children with cancer. This includes information on childhood Hodgkin lymphoma and childhood non-Hodgkin lymphoma, and the story books Will and Sophie have radiotherapy, Jess's bone marrow donation, and Ben’s stem cell transplant.
Macmillan Cancer Support is a charity that supports people with all kinds of cancer. They can provide practical advice to parents on subjects like benefits and returning to work.
Anthony Nolan is a charity that support people having stem cell transplants and their families. They produce information aimed at children and families including A parent’s guide to the transplant journey and the storybook Lucy and the good soldiers.
Resources for teachers and other professionals
The following information may help you support a child with blood cancer or talk to other children in schools or community settings.
- Clic Sargent's Cancer and school life pack has been developed for schools where a child or young person has been diagnosed with cancer and their Outreach Information Resource has been created to help inform professionals supporting a child with cancer.
- Macmillan Cancer Support also produce information to use if a young person in your school has cancer.