Jack, who has Moebius Syndrome, is unable to walk unassisted, has difficulty with his hearing and sight, and is unable to smile. Despite this he has completed the Great North and Great Manchester Junior runs a number of times, as well as climbing Yorkshire’s three peaks and Snowdon to raise thousands of pounds for Leukaemia & Lymphoma Research.
The 16 year old from Belton in Lancashire was surprised by Radio 1 DJ Nick Grimshaw, who visited him at his home to share the amazing news. The award, presented at the Radio 1 Teen Awards ceremony on Sunday (19 Oct) at Wembley Stadium, was created in memory of 19-year-old Stephen who raised £5m for charity before his death from cancer in May.
Jack said: “I do what I do to help other people. Yes I have Moebius Syndrome but that is not a terminal illness like blood cancer can often be. Leukaemia, lymphoma and myeloma destroys so many lives, both young and old, and so many of those lives can be saved with money raised for research and to support patients with the disease.
“I am very proud and very humble that my name is linked to an inspirational person like Stephen Sutton and I shall aspire to honour his memory.”
Jack’s mum, Linda, added: “Moebius Syndrome is known as life without a smile but Jack smiles from inside in a big way. I am proud of him every single day of his life - the way he lives his life, the way in which, despite his disability, he devotes himself to helping others. He is an incredible young man.”
Cathy Gilman, Chief Executive of Leukaemia & Lymphoma Research, said: “When we heard the news that Jack had won this very special award we were absolutely delighted for him. His determination to raise tens of thousands of pounds to help those affected by blood cancer is incredibly selfless and truly inspirational.”
Watch the BBC video of Radio One Breakfast DJ Nick Grimshaw meeting Jack ahead of the Awards