Moss J
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Transplant news

Moss J
Posted by
30 Jun 2015

Well, after being finally discharged last week I met transplant team at the QE. Yesterday who shared the brilliant news that they have found a 10/10 match for me for transplant and we will be going ahead in early August. Now to spend July catching up on some much needed family time before we go on to do some curing (note the positive attitude?!) 

finally feel like there's light at the end of this long tunnel

Comments

Anonymous
01.07.2015

That's fantastic news Josie, so glad to hear you are home and feeling positive about the next couple of months. Sending best wishes to you and your family - hope you have a lovely time catching up on cuddles with your little ones. Keeping everything crossed that everything goes well for you :-)

06.07.2015

Josie this is absolutely wonderful news! There's still a long road ahead as you know but as you say there is now a light at the end of the tunnel. 

I remember going through the same process myself more than 10 years ago and am behind you every single step of the way. Enjoy the time with your family in the build up to the transplant and please don't hesitate to get in touch if you want to talk at any time about the transplant process.

Anonymous
09.07.2015

Thanks Andy. I'm amazed by how little time they say I'll be in Hospital but I'm assuming I won't go home feeling 100% and full of energy? I'm just so desperate to get back to the old me, I even asked the dock tif about returning to work and I've not even had the transplant yet!

Anonymous
12.07.2015

I'm a young adult who received a cord blood stem cell transplant for AML. Hang on with all you've got. It's a roller coaster. Some days will be hour by hour or minute to minute. Try to practice guided imagery, it's a psychological weapon/tool that can help you through the rough times. Laugh often and don't take yourself to seriously, that's hard given the circumstances, but surround yourself around ppl/things that make you laugh.
Use coconut oil for mouth sores, skin ailments and scalp.
Advocate for yourself or have a close person advocate for what you want and never be afraid to ask any questions.
Try any and every food that you can handle, it's a trial and error situation. Protein packed smoothies, organic papaya juice, broths/soups from trader Joe's to get nutrition when eating solid food seems too difficult. Be patient with yourself, the good stuff can get frustrating at times, but be kind to yourself. DRINK LOTS of fluids.
In the meantime, until transplant, bulk up on as much nutritious food as you can. Rest and spend time with loved ones. Treat yourself to ice cream or your favorite foods.
Sending healing thoughts your way. ✌️❤️

12.07.2015

That is brilliant news Josephine. I am so pleased for you and hope that all goes as smoothly as possible for you. Make the most of your time before the transplant, and if you can do something special with your family it will help during the tough days during the transplant. Good luck xx

Anonymous
12.07.2015

Your warrior Josie!! I'm praying for you from Palm Beach Gardens Florida!!!!!! Hold on to the hand of God! He sits with you through your struggle!! Put your pain on him!!! Many blessings for a strong beautiful woman!!!!!

Anonymous
12.07.2015

Very best of luck with your transplant. X

Anonymous
12.07.2015

hi there, that is excellent news, my brother had a transplant from a kind German donor, six years later he has two grandchildren, which he never thought he would see, and is doing great. I wish you all the very best !

Anonymous
12.07.2015

Hi Josie, I have about 10 friends who I still keep in touch with who are alive today because of a Stem Cell Transplant. Some had myelofibrosis, MM, AML, ACL, AML, MCL. As each month passes it seems that the success rate gets better and better. We look forward in celebrating your new birthday as well as thanking your donor who is giving you the ultimate gift of life.

Anonymous
12.07.2015

I want to wish you the very best in your transplant. May God touch you with health, happiness, success and all of the possibility of a wonderful transplant. Bill

Anonymous
12.07.2015

Sending you positive love. Go girl xxxx

Anonymous
13.07.2015

I wish you so much ...... luck, blessings, a great future.

Anonymous
13.07.2015

Stay strong!!!
Even though you don't know me, my prayers are with you throughout it all. Fight a good fight, and stay very strong!

Anonymous
13.07.2015

Hi Josie - I had a MUD transplant with an 8/8 donor in January 2014 - and Ive done well. Transplant is pretty tough as Im sure you are a]ware, but I took comfort in the fact that the new immune system kicks in from around day 12 and this was much better than how long it took for my immune system to come back up after some of the chemo rounds leading up to transplant! My new immune system took really well and I was discharged 3 weeks post transplant, but went daily to daystay for some time. You will feel weak and exhausted easily post transplant for some time, but I began walking about 8 weeks post transplant - only to the letterbox and back to begin with and then jst an extra metre each time. By 6 months I could walk around the block and have kept walking ever since - something I really enjoy having been holed up in a hospital for so long! I had quite a few issues wth nausea and vomiting post transplant and had inflammation of the stomach lining, but with losec and maxalon I got by. Still on a large losec dose now but on the improve all the time and cant stop me eating now! My key advice for transplant - remember nothing lasts for ever, one day at a time - just work on counting down the days and take all the pain relief and anti-nausea you can - if nothing else they will help you sleep through that period! I was on a morphine pump for pain and it was a lifesaver. Best of luck - you can do it! Will say some prayers for your cure Samantha xx