"We're stopping the treatment" - hardest words to hear about my dad.
The treatment is no longer helping and we'll be stopping it. He will be looking at more end of life care from now on. Sickening words to hear & my heart is breaking for my wonderful father.
A few weeks ago my dad was told that the RCHOP/ methotrexate combo treatment he'd been receiving for his nhl lymphoma was going to be stopped as it wasn't working anymore and the doctors now know the cancerous cells have spread throughout his brain. Devastated is just an understatement of how I feel for him, let alone for my mother who has been by his side almost every day since the start of this year, supporting him through this horrible time. It's been a time of terrible lows since he was hospitalised in Feb; paranoia, numerous infections of bladder and kidneys, sleepless nights, bleak depressions & hopelessness. There have also been some highs too; massive closeness and authenticity in the whole familys relationships with dad, humour, meeting the most amazing nurses, carers and social workers who have been such a help to dad & so nice to us all, to name but a few.
However now comes the hardest part - facing my fathers approaching death and the fact that he will never walk unaided again ( his balance is severely affected by the lymphoma). His option now that we have all agreed on is a care home nearest to mum, so that we can spend as much quality time with him as possible & make his passing as positive as it can be. This is not how he planned this year to be, but as they say, God laughs when you make plans. Any advice or help anyone has for our family, especially my dad, please do message me if possible..it would be invaluable. I am petrified for him and would like any knowledge anyone has out there who has gone through losing someone to this. Much love to you all on your own journeys & to Bloodwise in particular, for being such a marvellous resource & support.
Live, laugh, love xxx ❤