My clotting wasn’t right today so the lumbar puncture had to be cancelled again. However, my levels are slowly improving so we are hoping we can go ahead on Monday.
I have had some good news today as they have changed the treatment after the results of the 2011 trial, meaning that now there is less blocks of chemo that we have to go through. Ed was over the moon as he thought he was coming in for a long stay today but instead they have put him on maintenance and sent him on his merry way to live almost normally again!
I’m doing a lot of lying around in bed feeling sorry for myself at the moment, hoping this is just a phase and it will pass as feeling helpless and demotivated is not fun. Earlier we got a bit creative with the bedpans as I am not allowed to have a full on bath because of my central line, mum tried something that she does with her patients back home… filling them with warm water and shower gel to give me a relaxing foot bath! Admittedly she does it for her patients in a wash basin but we had limited resources!
(pause writing for heart scan)
Well that was interesting, had to stop blogging so they could scan to check my heart function. This involved me stripping but staying covered under a sheet and a quite young male nurse/doctor/radiologist/whoever shoving a probe around my chest. Am now covered in pesky ultrasound gel but at least I know my heart is healthy! I’ve been snoozing ever since he left (why waste the opportunity as I was already tucked up in bed!) but one of the nurses is going to get me playing a board game down the other end soon to make sure I’m moving around.