The Bloodwise logo. Bloodwise appears in black text against a white background
Posted by

Travelling with blood cancer? What you need to know

The Bloodwise logo. Bloodwise appears in black text against a white background
Posted by
Updated 14 Aug 2019

It’s August and the summer holiday season has arrived. But for people with blood cancer, there are lots of things to think about before jetting off. Bloodwise Ambassadors share their tips for choosing a holiday that won’t provoke your symptoms, packing medication and avoiding infection while you’re away 

How to choose the right time

Emma (pictured above), who’s in remission from acute lymphoblastic leukaemia (ALL), recommends being realistic with timing: 

“When you’ve finished treatment, I would suggest waiting 4-6 months to regain some energy before going away. Travelling can be heavy going, and it can take time to build up some strength.” 

George, who’s also in remission from ALL, finds that a holiday is an important way for him and his wife to enjoy life after their experience with blood cancer: 

“Since my stem cell transplant, we've tried to do a 'big' holiday every year: it helps us feel like we’re making the most of life! When we’re booking or checking in, we always play the cancer card. When we got the Eurostar to Brussels on the 100-day anniversary of my transplant, we had a first-class carriage to ourselves.” 

If you’re not sure whether you’re ready for a holiday, Emma recommends: “have a chat with your clinical nurse specialist or consultant before you go. If you have worries, no matter how trivial, they’ll be best placed to put your mind at rest.” 

How to choose your destination

Emma says: “When I was on treatment, I didn’t travel outside of a one-hour radius of a hospital.” 

Sylvia, whose husband has acute lymphoblastic leukaemia (ALL), says: 

“We plan trips around open spaces in the outdoors, where there’s less chance of picking up an infection. We travel in short bursts to avoid travel sickness. We have a static caravan about an hour from home so we can get a change of scenery without it being a major event.” 

Helen Tait, who's in remission from AML, has advice for anyone travelling in Europe: 

“Get a European Health Insurance Card (EHIC). It’ll give you free access to state hospitals.”

Helen on holiday

How to choose your type of transport

Erica, who’s on watch and wait with chronic lymphocytic leukaemia (CLL), recommends avoiding air travel if you’re susceptible to infections: 

“I avoid flying because of the recycled air in the cabins, which may cause me to catch bugs. I break up long journeys to avoid fatigue, and steer clear of places with high humidity, because it saps my energy and makes me feel faint.” 

How to pack medication 

Paul, who has chronic myeloid leukaemia (CML), has advice for packing medicine:  

“I always take one of my consultant check-up reports to pack with my chemo drugs. It has the NHS Trust official contact details on it, info about my diagnosis, treatment and the drugs I'm on and the dosage. These things should help you avoid tricky conversations with Customs Officers.” 

Mel, who has CLL, also has words of wisdom for anyone taking medicine in their luggage: 

“If you’re travelling with someone else, take double the amount of medication with you’ll need. Put half in your bag, and the other half in your companion’s bag – just in case your luggage goes missing. And it should be in your hand luggage, rather than hold, which is more likely to be lost.”

Mel and his family

Other things to pack

Emma has a list of must-take items: “if it's going to be warm, take sun cream with a high SPF and a hat. If you’re flying, compression socks, face mist and an eye mask are really useful.” 

Erica adds: “I take a written medical diary with details about my condition, allergies, current medications and dosages.”

How to get travel insurance when you have blood cancer

George recommends looking for companies who have some proper knowledge of cancer: “I use an insurance company which was set up by someone who had cancer herself. They really understand my situation.” 

Emma recommends reading the thread about travel insurance on our online community forum.

How to cope with symptoms and side effects while you’re away from home

Emma thinks it’s important to allow for rest time: 

“Don't overload the itinerary. Give yourself some breathing space in case you need to rest. Drink loads of water and stick to food that you know works for you.” 

Erica agrees: 

“My energy levels sap by mid afternoon, so I plan my days accordingly and allow time for naps.  I always make sure I can get back to base if I’m not feeling well. I also try to get some fresh air and exercise, which makes me feel better, but make sure I have plenty of me time, like having a bubble bath.”

Louise (pictured above with her family) is in remission from Hodgkin lymphoma. She adds: 

“Listen to your body and don’t push it too far. Otherwise, you won’t feel the benefit of your break.” 

Always speak to your doctor or nurse before you go on holiday to find out if there's anything you need to be aware of.

If you’d like to discuss blood cancer with people who understand, join the conversation on our online community forum.

Join our online forum

 

 

Make a donation

I would like to give...