Updated 14 Mar 2019

There’s a lot of support that you – and those close to you – might need if you’ve been diagnosed with CML. As well as medical information about your condition, other information will be important – such as how to tell people, how to look after yourself emotionally and physically and practical advice about things like finances.

You'll find more information and places to get support in our Living with blood cancer section.

For people with CML, there are some other things to think about, too.

Things to think about if you’re taking TKIs

If you’re taking TKIs, it’s important to:

  • take your tablets according to the instructions of your doctor or pharmacist
  • only take half the recommended maximum dose of paracetamol, as TKIs can stop your body from processing this properly
  • avoid eating or drinking grapefruit, grapefruit juice, pomegranate, Seville oranges or any Seville orange juice (other types of orange and orange juice are still fine to eat/drink), since chemicals in these fruits can stop TKIs from working properly.

Currently, there’s not much evidence about the impact that drinking alcohol can have on TKIs. But if your liver is working normally, it’s generally thought to be ok for you to drink alcohol – as long as you follow the UK’s guidelines and drink sensibly. If your treatment starts to affect your liver, your healthcare team may advise you to drink less alcohol, or to stop drinking completely.

Watch Katie talk about her experience of life with CML.

Things to think about if you need stronger treatment

If you don’t respond well to at least two TKIs and need stronger treatment involving chemotherapy or a stem cell transplant, your immune system may not be working as normal, so you’ll need to take extra care to avoid infections that you might get from food.

For more advice on this, order or download our booklet, Eating well with neutropenia.

You won’t need to take these precautions if you’re in the chronic phase and are taking TKIs, however.

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