Many people affected by MPN find it useful to call on the expert information, advice and support offered by a variety of organisations, including ourselves. As MPN are blood disorders that are closely linked to blood cancers, many cancer charities will offer you support with your condition. Here are some we recommend.
We offer patient information online and in free printed booklets, and have an online community you may like to join.
We can help with practical and emotional support and signpost you to other available services.
Macmillan Cancer Support
Offers practical, medical, financial and emotional support.
CancerHelp UK (Cancer Research UK’s patient support service)
Offers information about different conditions, current research and practical support.
A specialist charity for people with MPN. They offer newsletters and patient events.
Offers patient information, a 24-hour care line and support groups for people affected by leukaemia, lymphoma, myeloma, myelodysplastic syndromes, myeloproliferative neoplasms and aplastic anaemia.
African Caribbean Leukaemia Trust (ACLT)
The ACLT aims to increase the number of black, mixed-race and ethnic minority people on the UK Bone Marrow Register by raising awareness and running donor recruitment drives.
Runs the UK’s largest stem cell register, matching donors to patients with leukaemia and other blood related disorders who need a stem cell transplant.
Maggie’s Cancer Caring Centres
Centres across the UK, run by specialist staff who provide information, benefits advice and psychological support.
Marie Curie Cancer Care
Nine hospices throughout the UK and offers end of life support to patients in their own homes, free of charge.
Provides an identification system for individuals with hidden medical conditions and allergies, in the form of emblems you wear on your body and necklaces or wrist bands.
Citizens Advice Bureau (CAB)
Offers advice on benefits and help with filling out benefits forms.
Department for Work & Pensions (DWP)
Responsible for social security benefits. Provides information and advice about financial support, rights and employment.
Macmillan Cancer Support Grants
A Macmillan grant is a one-off payment for adults, young people or children with cancer, to cover a wide range of practical needs.
Macmillan Cancer Support
Provides information about what to consider when looking for travel insurance, along with recommendations from the Macmillan online community.
Association of British Insurers (ABI)
Provides information about getting travel insurance and contact details for specialist travel companies.
British Insurance Broker’s Association (BIBA)
Offers advice on finding an appropriate BIBA-registered insurance broker.