Caroline C
Posted by

5 months on

Caroline C
Posted by
14 Nov 2014

Nico finally finished her chemo. We are all hanging on.

So here we are, 5 months on.  Much changed and living with this thing.  Nico came through her treatment well, but as all will know we are not off the hook yet.  We just have to live with the worry of the thing recurring and that is as good as it gets for three years. 

The summer is a blur now.  We run painting holidays and although the initial reaction was to cancel everything, in the end we managed to run every course except one, which was scheduled a week after the diagnosis.  Of course we told all the artists about the situation and I am pleased to say everyone stuck by us.  We didn't have a single cancellation.  Which just goes to prove what I have always said.  Only nice people go on painting holidays.

Andrea usually does the cooking but his dad stepped into the breach and catered all 10 of the courses.  What a hero.  Meanwhile Andrea was in the hospital with Nico.  I was tutoring and, to be honest, it was agonising because I wanted to be with her.  She has been amazing, only crying when she realised she wouldn't be able to go to the end of term party - I know, I know - children are very resilient - but really she has been an example to us all.

There is so much to write about, and still the astonishment that this thing happened to her, to us.  That where we used to worry about 'too much sugar' , we are completely at home with terms like 'transfusion' and 'morphine drip'.  It still breaks my heart but Nico came home from her first visit to atheltics last week and, breathless and pink said 'at last I feel like a normal girl'.  Long may it last.



Hi Caroline,

Thanks so much for the update. Absolutley wonderful to hear that Nico came through her treatment and is back at school. The road to recovery will take a while but as she says herself 'at lest I feel like a normal girl.' We've got everything crossed that she gets stronger and stronger from here on in and that she remains in remission from here on in.

Great to hear, too, that the family have rallied round you all and that the painting holidays are still doing so well - that must be an enormous source of relief given everything that you've been through. 

If there's anything we can do to help in the coming weeks and months please don't hesitate to get in touch - it's what we're here for! 

Ellie Dawes

So great to hear from you Caroline and what a moving photograph too.

I'm so pleased to hear that Nico is feeling normal again and going to athletics. I'm sure that many parents reading this will recognise your feelings about having to work while Nico was in hospital and worries about relapse. So many patients talk about the difficulties of getting 'back to normal' after treatment, I hope that you and your family keep looking after each other, as you have been so brilliantly, and can enjoy the sight of your little girl running around outside again. Does she still talk about planning a holiday to New York?


Hi Ellie,  We are having to come good on some rash promises made in the desperate atmosphere of the hospital, although New York seems to now have morphed into Universal Studios.  But we will all have to wait till spring when hopefully the wbc s are fully recovered.  Thank you so much for your support.