Barry Pinnington
Posted by

Diagnosed 2 years ago with CLL

Barry Pinnington
Posted by
19 Dec 2014

I am 2 years into my watch and wait and currently on a yearly check up.

This is the first time i have put pen to paper [if you can call it that!] to writing a blog. I am 50 years old and a racecourse bookie who travels the length and breadth of the UK. I was diagnosed with CLL a couple of years ago and i am luckily in the 'watch and wait' regime at the moment. I play tennis a couple of times a week, play golf off a 6 handicap and five a side every Monday. One of my main concerns at the moment is a shortage of breathe, to which i have never encountered previously. Is there any advice that anyone can give me to hopefully carry on playing my beloved sports or is there a danger of me pushing my heart too much with Cll lurking in the background?.

Cheers Barry

 

Comments

24.12.2014

Thanks so much for getting in touch. If you're suffering from shortage of breath and are worried about the strain being placed on your heart then the best thing you can do is get in touch with your doctor and consultant and check that everything is ok by having an ECG which should establish whether your heart is ok. On a personal level I would advise that you listen to your body and don't push it too hard.

Being on Watch and Wait can be extremely difficult for patients as the uncertainty can be very unsettling. However you're not alone and we're here to help in any way that we can. Kate Giles also writes a fantastic blog that is well worth a read.

Have a good Christmas and so stay in touch.

Andy

06.01.2015

Hi Barry, it's always great to hear from a fellow CLL/SLL patient & I have to say I'm incredibly impressed about your fitness levels with tennis, golf & footie! Like you, I'm on watch & wait but I really do struggle with fatigue - I think its a bit of a vicious circle in that I feel tired so I do less which in turn makes me feel more tired! I would echo Andy's comments about listening to your body & would definitely get yourself checked out by your Dr just to be on the safe side but in the meantime keep in touch & keep blogging! All the best

Kate

 

Anonymous
09.01.2015

Hi Kate, thanks for your reply. I have seen my go this week and they are unsure as to my breathing problems. i have had an ecg today so will have to wait for the results. Perhaps it is a virus that has not cleared or maybe anaemia? I wonder is any other bloggers have had this problem? Anyway I will not bore you with any more of my problems! Look after yourself.
Cheers Barry

Anonymous
10.01.2015

Thanks for getting in contact Andy, this site is a great help.
Cheers Barry.