August 2014 and I find a lump behind my right ear my GP tells me not to worry its just a cyst. I go away happy then September 2015 I have a few lumps in my neck that havent gone away.
I go and see the GP again expecting the same response but am now told I need to get it checked out on the 2 week cancer referal but 'not to worry chances are it will be nothing'. Whilst I am waiting to see the specialist I get tonsilitis and nip to the emergency GP to get some antibiotics, she looks at me oddly and says the tonisilits is probably the cancer. Completely shocked I say 'what cancer?' to which she responds didnt you know you had cancer, to which I respond no I had no idea!
My world suddenly starts to spin.
I am rushed into A&E by my GP. A&E are slightly annoyed and very quickly kick me out as they don't see it as an emergency and think that the GP has over reacted! What a day!
I then go and see a top specialist at the Christie in Manchetser who is brilliant and tells me that he is pretty certain I have CLL and that it is just watch and wait, especially as I am feeling fine and have no real symptons but will have more blood tests to confirm diagnosis.
I feel slightly relieved and still having no symptons whatsoever and feeling completely normal I go away relatively happy...
Two weeks later go back and find out that actually its not CLL it's T-PLL which is very rare. Great!!!!!! Just great! And the long term treatment is a stem cell transplant! Could things get much worse???!!!
Well I am now just about getting over the shock of it and recently had my bone marrow biopsy. I will see my specialist to confirm next steps, next week.
Very oddly since I found out I had T-PLL I have started putting every ache and pain down to the cancer and am convinced that my body is shutting down. Having spoken to some great peope who have been through a stem cell transplant I can see light at the end of the tunnel and now know my brain is playing many tricks on me!
I know I have tough times ahead very tough times but I am determined to beat this and I have found support from other peope really valuable. So if you have been through this could you share your experiences with me it would really help. I'll keep posting if people are interested in my story. When I am 100% recovered I am going to spend my time rasiing money for these charities which I had never heard of before!