Leukaemia survivor and Leukaemia & Lymphoma Research supporter Kris Griffin has spent three days at a conference in the Czech Republic speaking to delegates from 60 countries about his experiences.
"I was invited to the Chronic Myeloid Leukaemia (CML) Horizons conference in Prague where I spoke to an audience of 150 patient advocates, nurses and physicians about using social media and being a 'connected' patient.
CML Horizons is a community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. It is run by the CML Advocates Network and hosted by the newly established, non-profit, Swiss-based, patient-driven "Leukaemia Patient Advocates Foundation" . The conference demonstrates the great power of the global community: inspiring best practice presentations, materials, marketplace sessions, interactive forums and updates by CML experts from all over the world.
This conference provides patients with much-needed scientific knowledge and advocacy skills and over the years has developed a great collaborative spirit across borders and regions, it is a unique global family and I am proud to be a part of it.
I have been battling chronic myeloid leukaemia (CML) for over five years now and I'm winning the fight, having been declared in remission from the disease. In recent weeks I also spoke at the Leukaemia & Lymphoma Research annual conference.
In the UK there are only 650 of us every year diagnosed with chronic myeloid leukaemia so it is a rarer form of cancer. It's hard to get our voice heard but this disease is a cancer that is being treated more and more successfully with tablets. The potential impact of this on other forms of cancers is great so it's important we network, fund-raise and support the life-saving progress and innovation that is being made every day."
Kris was treated at the Queen Elizabeth Hospital in Birmingham and also works as an advocate and parliamentary lobbyist fighting for other cancer victims to have access to the drugs they need. He is director of marketing and communications at Ormiston Forge Academy in Cradley Heath, and also has a blog where people can stay up-to-date with his campaign efforts: www.accesscmldrugs.wordpress.com