Gordon W
Posted by

Last of the R-CHOP and last scan

Gordon W
Posted by
08 Aug 2015

October '14 to January '15

The day came. Each Thursday ahead of my MOnday R_CHOP was an interview with my consultant. She seemed quite excited and told me that the the PET scan appeared to show that my lymphoma was almost completely clear of every infected part. Can’t remember if I actually mentioned it but my full diagnosis was of an aggressive B cell stage 4 lymphoma so it was quite advanced. You can imagine what this did to my confidence levels and it is fair to say that the remainder of my R-CHOP, 4 more cycle went mostly uneventfully with the sole exception of another bout of neutropenic episode in the run up to Christmas ‘14.

You can imagine how thrilled I was to be admitted with the strong possibility of a Nativity holiday spent cooped up in my Macmillen ward! In the end it was not so bad - I was sprung for the afternoon and evening so went home and saw all my lovely family. It was a lovely day and I shall never forget it.

The best way to explain the next part of the process is to lift this short paragraph from our own lymphoma web site - it sums it up perfectly. “Only a limited number of drugs can be safely given intrathecally (into the CSF). The one most often used as CNS prophylaxis is methotrexate. It is usually given with each cycle of intravenous chemotherapy. If you are having intravenous and intrathecal chemotherapy on the same day, the intravenous drugs will always be given first. “- See more at: http://www.lymphomas.org.uk/about-lymphoma/treatment/chemotherapy/cns-pr...

I had 4 cycles of this and it was all uneventful and this was followed up by a CT scan (not PET note!) and I was feeling well. So well in fact that I was anxsious to try to get back into work.

Back in October I had looked up the services of the Officers Association, a body set up to help ex-military officers find employment. They are brilliant and very friendly and helpful and gave me some useful contacts and I made several introductions from them but didn’t actually get work which was quite dispiriting. My next avenue after Christmas to explore more work in schools but I didn’t really want to do this as it is quite stressful and this was ably demonstrated following a week in a school in a big city where by the end of the week I was completely exhausted and feeling the effects of an oncoming illness, more of which later!

I’ll wrap up for now - I need to rest my brain!



Gordon thank you so much for another briliant blog. It's so useful for other patients to be able to read about the experiences of others and yours is particularly informative, especially your paragraph about chemo.

It's great to hear that your body responded so well and that you were able to look into getting back to work so quickly although I don't blame you on not looking to go back to teaching - that's hard at the best of times and was far too stressful for me!

Wishing you all the best and looking forward to reading yoru next blog.

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