Joe S
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My battle with childhood leukaemia

Joe S
Posted by
31 Jul 2014

The first time I was disagnosed with acute lymphoblastic leukaemia I was only two years old. After five years of treatment I thought I’d beaten it but it came back again when I was 9. After another two years of treatment, I was back leading a normal life before we discovered it had come back again on New Year’s Eve in 2010.

This time I had to have loads more chemotherapy, really horrible radiotherapy and a bone marrow transplant from an anonymous donor. I was in insolation in hospital whilst the new cells grew, and then followed a long, slow recovery (at home and in hospital). I was off school for nearly a year!

I found life after hospital a bit of a surreal experience which was much tougher than I thought it would be. However, I made it through and since going into remission I've been able to do some pretty amazing things. Every year we do the London Bikeathon to raise money and I love doing it as it is really inspiring. 

I've also sailed alongside Dame Ellen MacArthur in a charity sailing regatta around the Isle of Wight and in the summer of 2012 I even had the honour of carrying the Olympic Torch for part of its journey to the Olympic Stadium:

So far my family has raised about £30,000 to help fund more research into finding a cure for blood cancers, especially in children and I won't give up until we’ve beaten blood cancers in children for good (currently 90% success rate) because I don’t want any other kids to go through what I've been through.

Join us at Small Change, Big Impact to help ensure more people like Joe beat blood cancer

Comments

01.08.2014

Joe, even though I've already heard this story a few times it still amazes me every time. You've been through so much and have never once let it get you down. You are a real inspiration and I look forward to the day when you're with us at LLR - you'd be a fantastic asset to us but can turn your hand to so many things! Looking forward to seeing this #IceBucketChallenge in action!