Shaun A
Posted by

My first time

Shaun A
Posted by
02 May 2015

Hello everybody, this is my first time writing on here as I have struggled to come to terms with my current situation. Last year I was diagnosed with lymphoma and pushed everybody close to me away, I felt like I was letting everybody down and felt like a big burden to everybody! All they ever wanted for me was to help and I pushed them further and further away. I am determined to help anybody else going through anything that causes them the smallest bit of trouble and I will raise whatever I can to help them. I recently did a 10k and and am now doing the leeds half marathon in 9 days time to raise money for this brilliant charity!! My daughter is currently 2 and a half years old and I will do absolutely everything to make sure I am here to see her grow into the most beautiful amazing woman. 

Together we will all beat blood cancer!!!

Comments

06.05.2015

Shaun,

Thanks so much for joining our online community and being brave enough to get your thoughts and feelings out in the open. That takes real guts if you're a proud and firecely independent person who's not very good at opening up.

I was in your position myself 11 years ago when I was first diagnosed with CML. I didn't want to tell any of my friends either for fear of making a fuss and being a burden and initially kept my cards close to my chest but over time my position softened and I started to let people. Opening up was difficult at first but it got better as it went along and I became more used to it. I also felt so much better and found out that it really helped others, too, as they'd been itching to talk to me but didn't really know how to do that when I appeared so outwardly closed.

What I realised was that I wasn't being a burden at all and by opening up I actually made it easier for my friends and family to come to terms with it themselves. This, of course, is easier said than done and it might not necessarily work for you. The important thing to appreciate is that  you're not alone in feeling this way and everybody's way of dealing with blood cancer is different.

What I do think is important is that you talk to someone whether that be to a psychologist, your friends and family or fellow patients in an online support group. Writing this blog is a great starting point and I think that it's great that you're in a position now where you'd like to help others. I feel this will really help you too.

What type of lymphoma did you have and are you now in remission?

Stay in touch and good luck training for your Yorkshire Marathon. When's the big day? 

Anonymous
10.05.2015

Shaun,
It is scary but please stay positive x

11.05.2015

Shaun my beautiful girls are 4 and 10 months and I am damned if I'm going to let this disease rob me off seeing them grow up. Stay strong and stay positive.